my 8 yr old son is in the middle of his 2nd flare in 7 months, his last colonoscopy 2 days ago, the Ped. GI siad he was so inflamed he couldn't get a whole scope for fear of damaginf colon due to his colon being thin from being so inflamed. Since April he has been on Asacol then switched to Lialda (3 a day), was taking entocort (9 daily) but has been on 60 mg of prednisone since Christmas due to a flare, takes reglan and tums for his stomach (dr mentioned scars from bile), 3 cortisone enamas daily(although actually getting 3 is almost impossible, he is so tired and frustated with them)
along with vitamins....... now the dr says he needs to start on remicade because his colon is so ''HOT" right now he really needs to be agressive with treatment, he (the dr) had such concern on his face when he came out of the procedure that my hubby was scared. Does anyone here have a child on remicade and if so how much did they start with, etc ,etc the dr is talking giving him a treatment and then repeating it within a week if no change...any advice?