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Ulcerative Colitis
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Posted 3/6/2008 4:59 PM (GMT 0)
 

I have been having a flare I would say for the past month and a couple of weeks.  I am literally exhausted!  GI put me on entocort ec...I stayed with that for about a week and a half....it was doing nothing.  Blood, diarreha( can u believe i do not how to spell diarreha)!!!  I was going to to bathroom at least 20 times a day.  Lost weight of course....So I took it upon my self to go into my "stash" of pred...only started at 20mg and am now at 10mg.  It's getting better(i guess) but what is up with these mornings!  I am so sick in the morning...I mean I have to keep getting out of the shower!!  I have blood, mucous, diarhea, then I feel nauseous.  I am barely sleeping through the night( does pred give you insomnia)....I am just at a loss... Just called my DOC he is going to call in some Rowasa.....Great that ought to be fun...my butt is so sore!!!  I really hope treating it from both ends will help....Sorry, I am rattling I am just really over it and exhausted today....Does this drama ever stop?

Posted 3/6/2008 5:28 PM (GMT 0)
First, don't worry about spelling errors! :) We just use the term "D" when referring to diarrhea - it's much easier. Second, yes pred can cause insomnia. Third, mornings are usually tough on all of us. While you are sleeping so is your colon so when you get up in the morning, it's sort of an alarm clock for your colon. Mornings are hard on me too and I'm in remission! Yes the drama stops but usually only when you can calm your colon down unfortunately :(
Posted 3/6/2008 5:46 PM (GMT 0)
great I will use the slang..."D" that is much easier! Thanks for the words about the mornings....I thought is was just me! Hopefully, the remission wil come soon enough.
Posted 3/6/2008 6:41 PM (GMT 0)
I will cross my fingers and hope that the Rowasa can get you back on the right track. It is so miserable to be in a flare and nothing we do can help us instantly - though I wish it was so! Hang in there!
Posted 3/6/2008 6:46 PM (GMT 0)
I believe the hydrocortisone e's really helped me prev. also the rowasa did wonder for me too.
Posted 3/7/2008 6:35 AM (GMT 0)
Posted by Red_34: First, don't worry about spelling errors! :) We just use the term "D" when referring to diarrhea - it's much easier. Second, yes pred can cause insomnia. yeah Third, mornings are usually tough on all of us. While you are sleeping so is your colon so when you get up in the morning, it's sort of an alarm clock for your colon. Mornings are hard on me too and I'm in remission! yeah Yes the drama stops but usually only when you can calm your colon down unfortunately :(

Red_34 - This is the best explanation I have ever heard about morning difficulties!

I have been reading on this forum for a while and finally registered tonight. I first developed UC back in 1980 and have been been lucky enough to stay in remission for the most part through the years, but have always had rough mornings. I found this forum after having a minor flare recently due to work-related stress.
Posted 3/7/2008 12:00 PM (GMT 0)
Welcome Moo! :) Gotta love those mornings eh? ugh!
Posted 3/7/2008 12:31 PM (GMT 0)
 I am having such a horrible mornng/night. I am in so much pain with D every 20 - 30 minutes. Can't we get something for pain? I have an appt. at 10 this morning. It's only 4:30, so I still have a way to go.
Posted 3/7/2008 1:39 PM (GMT 0)
Gosh, I feel your pain...I am just getting off of the D every 20-30 minutes myself. It is exhausting and painful! You know I never asked about anything for pain I am always so concerned with trying to stop the bleeding/inflammation....I don't see why your doc wouldn't give you something. Try taking a couple tylenol or advil in the meantime.....It's almost ten...hang in there.
Posted 3/7/2008 2:06 PM (GMT 0)
Yes, talk to your doc about the pain. I think pain makes it harder to heal.

NO NSAIDS!!!! NSAIDS are ibuprofen, naproxen, aspirin... They may cause GI bleeding - which we don't need.

Tylenol (acetominephine sp?) is safe.
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