Grr I'm so frustrated!

I'm not frustrated with my Uc because for once it's actually behaving!  Well sort....I have been having a slight increase of symptoms but I think it's because my body is saying I am due to start my period (technically I haven't had one since October).  But what frustrates me now is some of the other things that are going on with me now and my inability to take NSAIDs.  I think I could finally be painfree if I was just able to take an anti-inflammatory.  It seems once I get a step up from one thing another steps in and takes its place.  I normally just roll with the punches but every now and then I like to throw a pity party - makes me feel better in the end.  Want to join me at my pity party - I'll bring the cake? 

I now have to go see a neurologist because my pain doc thinks that I may have a disc problem in my lower spine.  I will know for sure when I go for a MRI on Monday.  But now I'm beginning to wonder (since a friend brought it up me yesterday) if it is possible to get a cyst on your spinal cord.  I am HIGHLY prone to cysts and get them in the most unusual places.  But it's just speculation on my part - I don't know if I really do or not.  Or even what the heck is going on.  But many of my other pains would much easier to take and bear if I could just take anti-inflammatories. *sigh - darn that Uc!* Oh and forgot to mention - I know I lost my reflex in my right knee but had reflex in my right foot a month ago, now that is also gone.  I'm basically losing feeling and reflex on the right side of my body.  I also have fine tremors in my right arm.  I feel as if I'm going downhill ever sooooo slowly - one thing at a time!

Ok, random pity party is over (for now )

Sherry, Sorry to hear you are going through all this. Just when you think you can take a step forward, you take 2 steps back. Well, at least your UC is not acting up. Hope everything goes ok with the MRI. And of course I'll join your pity party. Can I bring anything?
Janice

Sherry
I am so bleeding sorry
You are going thru so much and still here supporting all .....you are truly special in my books

I wish you all the best in MRI on Monday and my heart thoughts and prayers are with you ......Luvs.......LYN

Sorry your body is ganging up on you, Sherry. Eat some cake for me, will you?

It actually is possible to have a cyst in your spinal cord, but as far as I know, they're congenital, forming before you're born as the cord develops. Hopefully it will be something curable (isn't it a shame that we're reduced to wishing for curable diseases?) and you'll soon be feeling better.

Cool - cake, ice cream, coffee and Lactaid! A gal can't ask for more! :)

No, unfortunately there is no other med available to me for pain. I can always resort to narcotic pain meds but I don't want to go that route. They constipate me majorly. Every once in a while in a blue moon I will take a Naproxen but only one because if I take more then that I start bleeding. I guess I can always start back on my Neurontin or even my Skelaxin. Skelaxin (I'm not sure if I'm spelling that right) is a muscle relaxer and I'm having the issue of leg muscle weakness so I don't want to collapse when I'm walking! Once I know what I'm facing then I'm sure we can take other medicinal routes.

Hmm just thought of something - I think I may go and try Bee Propolis again. Couldn't hurt anyway.

Q - yes I thought about the 6mp but I don't think it's that. Why would all of a sudden would I have these issues especially after being on 6mp for 1 1/2 years??? But if nothing shows up on the MRI - I guess I can raise the possibility to the doc.

Ah Sherry! Dang that all... I'm there for cake and ice cream! So, it's chocolate cake - what ice cream? Mint choco chip? yum... or even just a good vanilla - I'm licking lips as we speak...

I would really suggest consulting with a chiro about the disc issue. I've gotten a lot of relief in the past few weeks from doing just that. I really wonder what an MD would do for the problems I was having... I'm sure pain meds and muscle relaxers and then I wouldn't be able to function at all... Then the people at work would think I'm really loopy - or they could just blame it on being a yankee...

Sherry,

OMG you are blessed with so many issues! This one surely calls for a big pity party. I'll bring the party hats and the balloons. I really hope that the MRI shows something conclusive that they are able to treat. There are some great suggestions on here too. My Mom resorted to accupuncture when the Dr.(s) could not help her with her chronic back pain. She saw neurologists, chiropractors, pain clinics, therapists, had cortizone shots in her back, etc. The accupuncture really gave her some relief and now she is off of the tinge unit (pain unit) and is pretty much pain free. I'm not suggesting that your symptoms are even the same, but just to illustrate that my 70 yr. old Mom got relief from alternative therapy.  I'm sure that it will be a while before your MRI results are in but keep us posted. Good luck at your appt. I'll be thinking of you!

Oh it's mint chocolate chip ice cream of course! :)

I think I will give a chiro or accupuncture a try if the MRI shows nothing. It may help with the pain however that still won't give me the answer of why I'm losing nerve function on the right side of my body. I'm only saying this if the MRI doesn't show anything. But who knows maybe it will show something - not with my luck though! lol I don't hold much hope in the MRI showing anything really.

Joan, my primary wanted to try Celebrex on me but my GI adamantly said no. I am highly sensitive to anything that can cause bleeding. I can't even take aspirin without it making me flare. I'm in a happy place with my UC now that I'm not sure I want to rock THAT boat! :)

Susie, of course you can bring your own list to the party! Heck we all can bring our lists :)

Well I had the MRI yesterday and it wasn't toooooo bad. I should get the results sometime this week. What sort of freaked me out was when they first put my head in that head case with bars and then being place in the chamber. I was starting to get scared but made myself calm down. After that, it was a piece of cake. The contrast they used wasn't the same warming stuff they use in CAT scans. In fact, I didn't even feel a thing. So overall, even though it wasn't my most favorite test - that is reserved for the bone density test (now thats cool!), it wasn't my worse either (that being the sigmoidoscopies!).

And umm what are bronto legs????

Oh most definately loud! It sort of had rhythm though lol. I think the table shaking a little and the machine gun sounds were not my favorite thing out of the whole thing. The other bangs were like being at a rock concert :)

Yes my face rash went away! Something as simple as toothpaste who would've thunk it!

And Susie can keep her bronto legs too btw!

Crest Professional. I switched to an all natural paste and my rash started disappearing. I had that rash for 6 months and it was probably my toothpaste all the time!