Posted 4/27/2008 4:05 PM (GMT 0)
Hi, i'm still in the middle of a very strage flare, i don't know if i'm coming or going! think i will see my doctor tomorrow as it is causing a lot of pain now and i'm using too many painkillers. I go for my third remicade infusion on tuesday and i really want to know how many of you have managed to get off the pred and how soon after your first infusion. I've been taking pred for two and a half years now, i'm only on a small dose now but i would like to get off it eventually. I managed two months last year, the longest i've ever been off it only to be put back on after suffering with terrible joint pains, ridiculous i know. Not sure how much i can take it's doing head in, when one thing stops another starts!!! Thanks for listening, miriam x