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Ulcerative Colitis
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Posted 6/25/2008 1:51 AM (GMT 0)
My wife was diagnosed with uc around the age of 19. It was a severe case and she was hospitalized for almost a month. She is 26 now and is doing alright but she has never had a remision. She starts going as soon as she gets up atleast five times before she goes to work. I am not an expert on this but i would like to help her. She takes asacol and prednisone. Diets and remedies would help. Thanks.
Posted 6/25/2008 2:00 AM (GMT 0)

How nice that you are reaching out to try and help your wife.  First, if she is not seeing a GI she should be.  Managing UC with prednisone is not recommended.  That drug has a long list of long term side effects that should be avoided.  If she has been taking prednisone since age 19 she really needs to find a doctor who will help her get off of that drug.  There are other drugs available to help gain remission.  I would also suggest you get your wife involved in this board or in your local CCFA meetings.  She needs to get educated about the disease since it is a chronic life-long disease.  Meeting others with the disease can be very rewarding and helpful.

Sue

Posted 6/25/2008 2:00 AM (GMT 0)
Has she ever taken probiotics? Does she have a good doctor? Maybe some rectal medication, I use canasa suppositories twice a day and they work well for me along with asacol. Canasa is a prescription you would have to get the doc to prescribe. My doctor told me to eat a high fiber diet and drink LOTS of water. Not everyone with UC can tolerate a high fiber diet. Something a little strange I read on the website was interesting so I am going to try it. One guy said he was "healed" (put in remission) by eating a can of spinach everyday. Hey, It doesn't hurt to try, spinach is very good for you. Good luck to you and your wife, you will find lots of help on this website,I know it has helped me! Forvia is a supplement (multiviatamin) I heard about specifically designed for people with UC. You can google it and buy it on-line. I know you can't do everything you hear but maybe some things will help or be worth a try.
Take Care, Bellski
Posted 6/25/2008 2:33 AM (GMT 0)
She has a gi doc that she sees and she only uses prednisone when she has a bad flare up but that seems to be to often. She takes 3 asacol 3x daily. We heard about the omega3 in fish oil pills have they helped anybody.
Posted 6/25/2008 11:57 AM (GMT 0)
Hi, welcome to HW Smaub :) I'm so sorry that your wife is dealing with this horrible disease. I agree about the rectal meds. They can really be effective - has she ever tried them?

Another supplement she can try is Bee Propolis. If she has no trouble with bees or their by-products then she might want to give this a go. Look up Bee Propolis online for more info on it. And I have to agree 100% on probiotics. Anyone that has bowel conditions should be using a probiotic. Probiotics are basically good bacteria used to replace the overabundant bad ones that are in the large intestine. It can really help with symptoms and overall health.

I personally can't do Omega3 or fish oil pills. For some reason they don't agree with me. But some on here have used it and it works great.
Posted 6/25/2008 12:17 PM (GMT 0)
I agree....rectal meds are a life saver for me.  I am also taking bee propolis, fish oil, mucosaheal and a calcium supplement.  I have tried acupuncture, I can't really tell a difference with it.  I am now trying a shake in place of breakfast called absorb plus.  I have been keeping a log of my symptoms as well.  I, like your wife developed UC at 19.  Mine is directly linked to my hormones.....when they flucuate, I get UC symptoms.  Keeping a log or journal may help you keep track of what foods set her off and if it is at all related to hormones.  It can help with what meds/supplements are working for her too.  There is a great log book at whole foods called body minder, that is the one I use and I think it helps a ton.  Good luck to you and your wife....I know it means the world to her to have your support through this.

Posted 6/25/2008 3:55 PM (GMT 0)
smaub,

I would also recommend probiotics such as culterelle, which helps to give formed stools. Also, try to have here avoid anything that contains sugar, avoid milk also and see if it helps.

NBT
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