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Ulcerative Colitis
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Posted 1/13/2009 9:31 PM (GMT 0)
What is the normal flare run for most people? (considering your doing everything by the book) I've been in mine for about 8 weeks..
Posted 1/13/2009 9:41 PM (GMT 0)
Mine have been from a minimum of a few days to a max of about 3 months. Strange but every flare seems to have its own lifespan that appears indeterminate of any set time frame. Just me anyway.
Posted 1/13/2009 9:46 PM (GMT 0)
I've never thought of my flares in terms of days. It always seems like if I'm in a flare, I'm in it for the long haul. I may have a few good days here and there, but when I do I'm never like "yay I'm in remission". My flares typically last several months, the one I'm in now has been going strong since the middle of last year.
Posted 1/13/2009 9:54 PM (GMT 0)
3wks to 3 months...
Posted 1/13/2009 10:06 PM (GMT 0)
Mine last a long time with lots of time in between. I'm 3.5 months now into my current flare-- which has been a JOY (this one has been sooooooooooooooooooooooooooooo hard on me).
Posted 1/13/2009 10:19 PM (GMT 0)
Almost at 2 1/2 to 3 months right now on this one....still flaring....eating spinach and s/f seed diet....eating 40mg predisone along with 12 pills of asacol a day, 4x fish oil pills, multi vitimin, and eating non-inflammatory foods as much as possible....

Most of my flares have lasted many months, with "remission" being nothing more than relief from the current flare - my symptoms have never 100% disappeared in the 14 years I have had UC....

Flaring, or not, I always have at least one of the following symptoms:

1.) Urgency
2.) Cramps
3.) Bleeding
4.) Mucous
5.) Loose, ribbon stool, or D
6.) Tiredness / exhaustion

I measure my flare-to-remission ratio in units of how many of the above occur at once.... Right now I have all of the above so I consider myself flaring pretty bad although improving a bit from the high does of pred.
If I only have mucous one day, or maybe some urgency, I consider that a good day. If I go a long period of time - say weeks to months with only 1 or 2 symptoms, to me that is the best remission I have seen.
Posted 1/13/2009 10:28 PM (GMT 0)
Mine last a year or more usually. I can never seem to get in remission. Granted I only have 2-3 bms most days but I still have blood and urgency every single day. During this time I also have times where things are way worse but usually my symptoms are as I just mentioned.
Posted 1/13/2009 10:28 PM (GMT 0)
16 years.......with a few smattering of good days in between. No actually I would have to say that yes while my flares have lasted that long, I have had a few short lived remissions but they only lasted several months.
Posted 1/13/2009 10:48 PM (GMT 0)
Before my current flare ( Six months now, and still no signs of it getting better), I had a period without symptoms that was almost 2 whole years!!

Before that, my flares ranged from 1 to 3 months...so this latest one isn't good and I think the UC has spread... cry

But I've got my colonoscopy this Thursday, and I'm trying to stay positive....If I had 2 years without symptoms before, that's what I'm aiming for again! :-)
Posted 1/14/2009 12:04 AM (GMT 0)
Week, month, maybe a year.
Posted 1/14/2009 12:08 AM (GMT 0)
I've only had one flare. From June 2001 until April 2006. Since then I've been in remission.
Posted 1/14/2009 12:17 AM (GMT 0)
am still in my first flare.... but its lasted over a year.......
Posted 1/14/2009 1:10 AM (GMT 0)
My last flare was about 3 weeks, but it wasn't bad at all, unlike when I was first diagnosed.
Posted 1/14/2009 1:50 AM (GMT 0)

How do you guys and gals deal with work during these month/year long flares?

I was just diagnosed this past Christmas Eve but had been flaring for most of December and missed out on 3 weeks of work.  Luckily I had saved plenty of vacationa nd sick days where it didn't hurt me too bad.  I can't imagine going through that serious of a flare for months/years and trying to work.  In fact, I know it would be very difficut with my current job/career.

Posted 1/14/2009 2:11 AM (GMT 0)
Let's see, my first flare at the time of diagnosis lasted about 6 months- I went into remission with Rowaa enemas & asacol. Stayed in remission & did great for about 4 years, then went off meds (against GI's advice)- Hey, I was "cured"!!! Then started flaring again terribly soon thereafter & have been in some sort of flare ever since, it's been about 3 years now... sad   I'm exactly like mbx5- I always have some type of symptom, it just ranges in severity. Right now it's 3-5 bm's each morning, urgency, some mucous, some blood on the tp. And this is doing well! Working is rough- 2007 I barely worked at all, just went in as much as possible. 2008 I was hospitalized for a while, again out of work for a few months. But since then things have been well- I've been working about 20 hours a week steadily. Which is all I can really do, being a Mom. And lucky for me I work in a doctor's office, so my employers have always been very understanding when I just can't do it. If I worked in retail, for example, there is no way Id've been able to keep my job. Having a desk job in a medical facility means I can always run to the bathroom if need be.
Posted 1/15/2009 2:04 AM (GMT 0)
Bad flares, when I ask for prednisone, about 3 months. Usually once every year or two. In between I'm still far from normal but the urgency is less.
Posted 1/15/2009 3:54 AM (GMT 0)
I have had two flares - both lasted 6-7 months.  I now have been in remission since September!

Posted 1/15/2009 4:17 AM (GMT 0)
Almost 4years now in my current flare. Some good days in between. Before this flare I enjoyed a 6 year remission.
Posted 1/15/2009 4:33 AM (GMT 0)
Geez...four years straight...can you change meds?
Posted 1/15/2009 4:42 AM (GMT 0)
The only times I seem to go into remission is when I go off meds entirely. I think I have been on high doses of so much over the years that not much is effective anymore. I also had a child in those years and opted for a med free pregnancy plus I nursed after and refused meds while doing so.
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