Low Dose Naltrexone helps autoimmune/chrons/uc and numerous other disease

Dr. Meyer his number is 989-791-7643, that appt in next week on the 27th. I'm in a toss up right now weather I will actually go see him or just work with the doctor in PA. I'm working with a Dr. from PA that Skips pharmacy that compounds this medication in lower dosages and that appt in this Thursday over the phone. Miss from here (HW) see this doctor in person and feels he's very knowledgable and trusts him. She's been on the LDN since Nov and is starting to see improvements. She posted on this post too. I'm very excited! I will post as I start taking the medication.

Hi Melissa,

I hope you used a compounding pharmacy that's familiar with LDN like Skip's. I was on 20mg of pred and LDN at the same time, down to 2.5 mgs this week then hopefully off the pred for good. I'm a little anxious of seeing how it goes only being on LDN after this taper. That will be my only med, I also take a probiotic and some vitamins but no other prescriptions. I'm keeping my fingers crossed that my healing will continue. Based on previous study, the majority of people eventually went into remission on LDN so hopefully we are all in that majority here.

Take care,

Miss

Hi, My script should be in next week and it was compounding b/c the med comes in 4.5mg usually, so I'm starting out with 1.5mg and working my way up. I faxed my GI all the info last week and I talked to the nurse and my GI said she knows nothing about LDN and they're are not case studies out there. She is not very open to anything new I throw her way. This is the not the first thing I asked her review. I'm not on any meds for my uc and control it with diet and I have good days and bad days, but when I was telling her this and telling her the 5ASA drug make me sick (asacol, pentasa) she said ok then next we pull out the "Big Guns" and I thought that was pred and she "immunosurpressants" to me that's just so drastic. This is so opposite of what LDN is. I will post on my progress next week. In the meantime though my new doc needs to run tests on me to see why I'm have UC i.e. yeast sensitivity, yeast overgrow in the intestines and food allergies, he's been very thorough I think. I liked him alot and he's a doc from PA recommended by Miss her on HW. Then once they find what is causing my bad gut, swollen colon, then there's a doc to work with that reverses the allergy. I'm very intriged by all this and I hope it all works out well.

I was wondering how you were consulting w/the doctor in PA? Are you doing phone consults and then are they ordering lab work at your local lab? I'm just curious as to how all of that is working. I'm interested in maybe talking to them too.

I got my script today so tonight will be my first night on LDN, the capsules are so small and it says on the bottle this medication was compounded for you. You can take it with or without food. I'm excited and nervous, but I have to use my faith! Will posted in a couple of days to let you know how I'm doing. Thanks

Just curious. Why will you take it now, are you flaring? .... since you're not on any meds

therearemiracles said...
I live near West Branch and I have found a MD out of Flint who's also a NP that is willing to consider it, they told me that over the phone. I also, have a consult with a doctor who prescribes this medication for those with UC and Chrons and I'm talking with him on Thursday. So either way, I will be on this medication it's a matter of this week or next. I'm currently on no meds. I'm very hopeful!

I am taking LDN (started on 3.0mg for first two weeks and now up to 4.5mg). I have been on it for about 10 weeks and as UC is an autoimmune disease, it really does help - or has worked for me! I no longer have those awful embarrassing attacks, bloatedness etc. Drs are sceptical about prescribing it as it hasn't passed clinical trials.

<edited> I'm sorry, but petitions are not allowed on the Healing Well website. Please read the Forum Rules if you have any questions. Thanks

Post Edited By Moderator (Lynnwood) : 1/27/2009 12:55:33 PM (GMT-7)

I feel my inflammation in my rectum is not as bad i.e. when I would go and go to the bathroom in the am my bum would hurt and ache with inflammation and swollen pain, I don't have that now even though like today I went to the bathroom a lot. I have a appt with a great allergist out of Flint, Dr. Ntazke and I wish I would have first gone this route many years ago . I do feel it's something I'm eating that I'm allergic too and then I'm not digesting it and it gives me grief trying to digest and it just passes through without digesting. My first week of LDN will be this Sunday, after two more weeks I bump up the dosages to 3.0mg. I really feel good though during the day. I'm not sickly feeling. However ,  Iwas feeling I  was on the healing curve when I took this antibiotic for my urinary tract infection a couple months back. I don't know what the connection could be, but after that I started to feel better in my gut. I will keep posting and thank you for following up. I took a leap of faith trying Dr. Sullivan, I first heard about him on Dr. Mercola's Newsletter, he wrote a article about LDN and then MISS from this forum started with Dr. Sullivan and she's feeling really good now and is having formed stools. I hope we can give you some hope. Linda

I've been on 3.5mg Naltrexone for a week. I am noticing blood again. Those of you who are on it what would you do????

mjw82704 -

I'm a fellow CO resident (Denver area), and I have been unable to get my GI to prescribe LDN to me. Did the Yahoo group provide you with a list of doctors names, or is there just one they recommend? Would you be open to sharing that info with me? I've gone through the group before and the threads are really hard to sort through and I never found the info I was looking for. I'm not having much luck with my meds, and the diet I've been trying seems to come and go...helps for a few days, then I have a few bad days, etc. Any info you can provide would be helpful.

Thanks.

Beartooth,

Dr. Terry Grossman. Dr. Catalano his partner also does it. They are at the Frontier Medical Institute in Lakewood, Colorado. They are on the internet wth Frontier Medical Institute. They will, do a phone consult for you. They use Belmar Pharmacy in Lakewood for LDN. 40 dollars for 3 months worth.

link to their website below:

http://www.fmiclinic.com/

Pharmacy Link Below:

http://www.belmarpharmacy.com/index.htm


I did not end up using them because my GI prescribed it for me, but I did use the Lakewood pharmacy. They mailed me the prescription and I got it in a day. I chose to use the pharmacy because the pharmacist was so helpful and knowledgeable. I hope that his helps you.

I wish you the very best. This disease is awful. I am hoping it will work for you:)



Melissa

Thank you Melissa. I'm actually right in Lakewood, so I'll give them a ring in the morning. Hopefully this will do the trick for me. I'm really sick of being sick.