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Has anyone tried this?

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Ulcerative Colitis
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Posted 1/21/2009 4:19 PM (GMT 0)
http://win-edge.com/PatientHealThyself.shtml  

My Niece's best friends Mom who lives in England tried this with great success...she also has UC that turned into Crohns : ( but she is doing very well with this.

Posted 1/21/2009 4:30 PM (GMT 0)
I think I have a book on that...someone gave it to me and I havn't really looked at it...something about eating probiotic dirt?
Posted 1/21/2009 4:35 PM (GMT 0)
If you read the info in the link it seems to explain it for the most part...the person states he was spending lots of money on expensive probiotics and they did not work.
Posted 1/21/2009 6:00 PM (GMT 0)
just to note, UC doesn't turn into crohn's or vise versa, she more likely was misDX and had CD to begin with or she is in the 2% of patients that have both UC and CD.

:)
Posted 1/21/2009 6:33 PM (GMT 0)
Rubin is the guy behind Primal Defense, which contains soil based organisms. I tried PD. After a few days of seemingly feeling better, my symptoms got much worse and improved as soon as I quit taking it. The safety of SBOs has been called into question and no one knows what their long-term effects might be.
Posted 1/21/2009 7:56 PM (GMT 0)
thanks, why then do some that have surgery then develop crohns?
Posted 1/22/2009 1:00 AM (GMT 0)
They had Crohns to begin with and after the surgery it reasserted itself in a different part of the colon. That's the main difference between UC and Crohns. Crohns can be the whole digestive tract and UC is just the large intestines
Posted 1/22/2009 1:17 AM (GMT 0)
Geez, UC and CD together : ((((
Posted 1/22/2009 3:43 PM (GMT 0)
Is it right if I have UC and do the sergery, you will NEVER get it again? Or there is still a chance?
Posted 1/22/2009 4:07 PM (GMT 0)

bbc said...
thanks, why then do some that have surgery then develop crohns?

Docs are suppose to inform their UC patients before surgery that DX is not always correct and that by having their colons removed doesn't mean that they will be cured of their IBD especially if it turns out they have CD (and were misDX) rather than UC.

2% of patients that do have both UC and CD is very rare...and alot of CDers get very confused when their docs tell them they have colitis and don't specify that it's actually crohn's colitis (which is still CD but it's affecting the colon) so that often leaves the patient thinking they have both UC and CD when infact they still only have CD....colitis is inflammation of the colon and too many throw the word "colitis" out there too loosely causing more confusion for others as well as themselves.

:)

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