Bennie said...
Someone here once mentioned that the next time you get someone who "knows" all the answers to tell that person to contact CCFA (or any other important medical foundation) because they haven't been able to find a cure so they would surely like to hear from the know-it-all!
That's funny.
I save myself this aggravation by not telling people I have it. And my family who know, well, they know I don't talk about it. But I can tell they know it is serious. Either that or it's possible they are all a little afraid of me...