Posted 4/17/2009 9:48 PM (GMT 0)
Hi. I was diagnosed with UC in Feb. 2008 after symptoms beginning in Dec. 2007 after starting Synthroid. I am up to 12 Asacol a day, been on Pred since July of 2008 and just coming to where I have a week left of 2.5mg. I have a terrible moonface, pitting edema in my legs, my abdomen is huge and I just keep on gaining weight. I was dancing a dance the other morning when I saw that I had gone down a pound, but two days later it was back on the scale. I am also a diabetic on an insulin pump [which the Pred. is really messing with.] I am 37 years old with a 7 year old daughter.
I have never been so depressed and frustrated in my life. How are you guys handling this? I don't know where I am. My "loose" stools are back, not sure if it's considered a flare up or what. My urgency is horrible and I average about 20 trips to the bathroom a day, if not more. I have no faith in my doctor, which I will be dealing with shortly. She did start me on 6MP back in Jan and just two days ago upped it to 75mg. a day. I don't know if it has kicked in or not. I am also using Canasa suppository every night. I know I am rambling and I apologize in advance but I just don;t know what to do. My husband is incredible but this is getting so old. I have lost me and I want her back but I just cannot seem to find her while I'm spending my life sitting on a potty.
I found that taking Immodium at the max dose helps me get by but I'm scared to do that long term. Why is no one mentioning that in all of these posts that I am reading? WHat do you know that I don't know? I have tried to do the Spinach/Sunflower seed diet..just having a really really hard time with the Spinach but doing great with the Sunflowers. Any ideas here. I'm desperate to get off the Pred. and will not go back on it for a very long time. Seems I'm having all of the problems with the Pred. that I had without it...