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how often do you have blood?

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Ulcerative Colitis
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Posted 7/6/2009 3:12 AM (GMT 0)
I feel like I am still coming to grips that I have this disease. I still can't believe it, and it has been a year next month that I got diagnosed.  I was curious if other people have blood, and how often. I tried searching it out, but I haven't figured out how to just search this forum yet.
Posted 7/6/2009 2:14 PM (GMT 0)
I haven't for about a month now, but I did most of the time for the 2 years since I have started having symptoms. Sometimes I would have a lot of bleeding so that it seemed all that was coming out was blood and clots
Posted 7/6/2009 2:26 PM (GMT 0)
I lost massive amounts of blood with my second flare. It was like having my period at its heaviest everyday, only with tons of blood clots in it too. I bled every day for six months straight. I've never quite recovered from it.

I'm now eating Cheerios every day. It's about the only cereal that is high in iron, vitamin B12, and folic acid and NOT sugar and am gradually getting stronger.
Posted 7/6/2009 4:16 PM (GMT 0)
practically every day! Whether it be tiny clumps of bloody mucous, or blood on the stool, or blood on the toilet paper, or pinkish mucous, it's always in the bowl in some form! Currently, I'm seeing more pinkish mucous than usual, I think because I postponed my Remicade infusion a week- I go this Wednesday. After the infusion the bleeding stops for about a week to 10 days, then starts right up. It's not like flare bleeding, when it's literally dripping into the bowl- then you're in rough shape (which you already know!). But honestly, I see blood all the time- which is odd, because that & urgency are my only real symptoms- my stools are totally formed, no D at all, only going about 5-8 times a day (which sounds like a lot- but it's nearly all within the first 2 hours of getting up in the AM). But that darned blood just doesn't go away.
Posted 7/6/2009 5:26 PM (GMT 0)
I also have formed stools and have the urgency at times and that darn blood. I have been having some form of blood also for years since diagnosis which was about 6 years ago. It seemed to go away for a day or so when using Rowasa enemas but comes right back. Can never seem to get completely clear. Told my GI that mine is defiantly connected with food. Sweets with a lot of sugar really make me gassy. Also I do not do well with milk. I am now trying the low Fodmap diet....... just started and less gas already.
Now we will see about the bleeding.



Colazol 2 capsules /3 times a day
Fish oil
Large doses of Megaflora probiatic
Rowasa Enemas as needed for flare

Post Edited (psychocolon) : 7/6/2009 11:29:02 AM (GMT-6)

Posted 7/6/2009 6:20 PM (GMT 0)
I've had bleeding for as long as a year, even daily for two years. I think I am just a bleeder. The last few months I have had little to no bleeding which is a huge improvement for me. I still have urgency every day and soft stools. I don't feel like I ever reach full remission where I am completely back to normal.
Posted 7/6/2009 11:40 PM (GMT 0)
I always had blood, a little or a whole lot, all these years. No cause for panic, I learned, my body makes more. It was the urgency that bothered me.
The Remicade has stopped the bleeding, finally.
Posted 7/7/2009 12:09 AM (GMT 0)

Both of my gastro doctors and my NP told me NOT to worry so much about bleeding unless I had a LOT and become anemic.  More important is the pain (mine if left-sided), diarrhea and urgency!

ElaineNY

Posted 7/7/2009 2:30 PM (GMT 0)
I was bleeding for over a year. It was light in the beginning but got pretty severe and caused me to become anemic. Now I haven't seen blood since the little relapse I had a few weeks ago.
Posted 7/7/2009 4:50 PM (GMT 0)
Sporadic. I had a little blood for one morning several weeks ago. 4-5 months with no bleeding. Almost a year of bleeding before that.
Posted 7/7/2009 5:20 PM (GMT 0)
I'm a bit of an unusual case. I'm either in a raging flare with 20 bathroom visits a day and bleeding every day (before Remicade) or going 2-3 times a day with no D, no urgency and no blood or mucus ever (with Remicade.)

Like everything else, I think this varies widely with people; if you're having any bleeding, though, you're not really in remission.
Posted 7/7/2009 9:54 PM (GMT 0)
My Gi guy also said do not worry so much about the blood unless it becomes a lot. He said it would be the last thing to go.
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