i was cured of c. diff via fecal transplant procedure performed at home. not a joke.

UC in indy

The donor question seems to be the most important part of all this. One reason to use a family member is that there some evidence to show that genetics play a role in determining which bacteria will colonize your colon. Therefore, it follows that if you use a symptomless donor with a similar genetic makeup, their new bacteria, minus the supposed "bad" bacteria that you have acquired and that has given you UC, will be more likely to colonize your colon. If you are willing to try FT then you are open to the possibility that there is a strong environmental factor playing a role in the development of UC (ie. the acquisition of an as yet unknown "bad" bacteria etc). In fact, the genetic factors contributing to UC are fairly weak - 10% chance of developing UC for offspring of those with UC. That being said, you point certainly is valid.

jo

Good logic Joma. My son had success with this...using his mom as the donor. I agree, colonization odds must be better with similar dna?

Awesome story! My son is one month post FT and doing great so far. He too responded almost immediately and was prior to that, classified as refractory and a candidate for surgery. He is also on Remicade which we intend to slowly taper. That said, colonization is key and we want to give it a little time before we proclaim cure. However, since getting UC two summers ago, NOTHING put him into remission....until now. As with your wife, my son suffered more than any child should. He is now full of life and back to being a kid, we pray it continues.

Thanks for sharing your story.....continue to pay it forward.

"probiotictherapy.com.au"

The most known protocol is to do abx at least one week prior....however, IMO, I believe it is not totally necessary. I know people who have success both ways. From our own experience, the abx quit working and my son had such a severe infection that his entire colon wall was covered with yellow cdiff spores and total inflammation throughout. The day after his initial FT, he said, "I feel like I have a new tummy".

Post Edited (trojen) : 3/2/2012 3:17:04 PM (GMT-7)

Definitely something to this, I am going to try it too. If docs are tall inking about it an doing it and it involves no medicine whatsoever, nobody is investing money or making money, then one has to assume there is validity to it. That is just the way things work, and I believe some are believing it could possibly cure uc in some people.

Trojen: my 9 yo son was diagnose last April (2014) with uc. Today he is 10 years old. He had blood transfusion #2 in December (2014) and was taken to ER last Saturday (memorial weekend) for complications. In march, he had an gi appt. things looked favorable for him since already completed two rounds of predinsone (April and December), but not more than a month and half later, he last 6 lbs and we were sure he was having a glare, but because he's anemic, ect. I wasn't sure what was going on :(. So his gi, took one look at him on may 5th, and said remicade was the next step. He has already gone through taking sulfas, mercap. Delzicol, and figured it was time to escalate to IV drug treatment. Well, I wasn't too cool with that, and I knew there was more going on. So, the gi's office went ahead and got insurance approval for the remicade - I, on the other hand, took my son to visit his pediatrician to check and see if it was his anemia. It wasn't, because my sin wasn't needing a blood transfusion, but he was weak, in pain and needed an appetite! His gi just figured the delzicol and mercap stopped working. I didn't want to simply accept that answer. So, I put him on an aggressive alternative treatment plan. Loads of good probiotics, fish oil, iron, b12, Folic acid, aloe vera juice, and boswellia. It got as far as week one, with no improvement. My son was not well! So, last Saturday evening, while showering he noticed what we think was a prolapse - that prompted the move to go to ER at the neighborhood children's hospital. Long story, short: the next night, the night nurse moves us into isolation because his stool tested pos for cdiff. Can you imagine that his last (now dumped) gi, just wanted to our him on remicade w/o ever checking more than his blood? Not to mention when I had asked if it was my son's anemi; what if he needed a transfusion, they just wanted to stick to the same remicade appt, and check then. That appoint was a whole week and half away (at that time). Which is why I took hi straight away to his prediatrician. If I wasn't trusting and waiting on the. Lord during this whole ordeal, I would've probably just listened to the gi and my son would be 2 infusions in with no relief from the untreated cdiff.!!! But The Lord is good - always, and He actually lead me to focus on my son's anemia, and that's what I did. The move to the ER was The Lord also, because He lead my sister to call me right at the moment, of the prolapse scare. She called me, the. Texted me to take my son to ER. Thank The Lord, for. His perfect timing of everything, because we got that 2nd opinion we needed. He has a new gi, and remicade has been red lit. He is back on delzicol and mercap. Because of cdiff which could gave made the meds ineffective.
In any case, after reading all the info on this communitity AWESOME forum, I'm very much considering this FT for my son. I'm going to ask his new gi about it, and if that's too out of the box for him, then I'll find someone who is willing, because this cdiff can come back, and I'm tired of my son dealing with this disease. It has interrupted his childhood a year too long. I can't see my son in pain anymore. The Lord has blessed me with all this wealth of info. My faith has grown immense sly this past month, and I believe God will heal my son. In fact, my son is already healed, I just need to continue to being obedient to Him. He is The Lord that healeth thee!

Beautiful story Alex, very inspiring. Keep posting your son's progress.

AlexXan said...
Trojen: my 9 yo son was diagnose last April (2014) with uc. Today he is 10 years old. He had blood transfusion #2 in December (2014) and was taken to ER last Saturday (memorial weekend) for complications. In march, he had an gi appt. things looked favorable for him since already completed two rounds of predinsone (April and December), but not more than a month and half later, he last 6 lbs and we were sure he was having a glare, but because he's anemic, ect. I wasn't sure what was going on :(. So his gi, took one look at him on may 5th, and said remicade was the next step. He has already gone through taking sulfas, mercap. Delzicol, and figured it was time to escalate to IV drug treatment. Well, I wasn't too cool with that, and I knew there was more going on. So, the gi's office went ahead and got insurance approval for the remicade - I, on the other hand, took my son to visit his pediatrician to check and see if it was his anemia. It wasn't, because my sin wasn't needing a blood transfusion, but he was weak, in pain and needed an appetite! His gi just figured the delzicol and mercap stopped working. I didn't want to simply accept that answer. So, I put him on an aggressive alternative treatment plan. Loads of good probiotics, fish oil, iron, b12, Folic acid, aloe vera juice, and boswellia. It got as far as week one, with no improvement. My son was not well! So, last Saturday evening, while showering he noticed what we think was a prolapse - that prompted the move to go to ER at the neighborhood children's hospital. Long story, short: the next night, the night nurse moves us into isolation because his stool tested pos for cdiff. Can you imagine that his last (now dumped) gi, just wanted to our him on remicade w/o ever checking more than his blood? Not to mention when I had asked if it was my son's anemi; what if he needed a transfusion, they just wanted to stick to the same remicade appt, and check then. That appoint was a whole week and half away (at that time). Which is why I took hi straight away to his prediatrician. If I wasn't trusting and waiting on the. Lord during this whole ordeal, I would've probably just listened to the gi and my son would be 2 infusions in with no relief from the untreated cdiff.!!! But The Lord is good - always, and He actually lead me to focus on my son's anemia, and that's what I did. The move to the ER was The Lord also, because He lead my sister to call me right at the moment, of the prolapse scare. She called me, the. Texted me to take my son to ER. Thank The Lord, for. His perfect timing of everything, because we got that 2nd opinion we needed. He has a new gi, and remicade has been red lit. He is back on delzicol and mercap. Because of cdiff which could gave made the meds ineffective.
In any case, after reading all the info on this communitity AWESOME forum, I'm very much considering this FT for my son. I'm going to ask his new gi about it, and if that's too out of the box for him, then I'll find someone who is willing, because this cdiff can come back, and I'm tired of my son dealing with this disease. It has interrupted his childhood a year too long. I can't see my son in pain anymore. The Lord has blessed me with all this wealth of info. My faith has grown immense sly this past month, and I believe God will heal my son. In fact, my son is already healed, I just need to continue to being obedient to Him. He is The Lord that healeth thee!