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Posted 7/19/2009 1:22 AM (GMT 0)
Hello,

Its been quite a while since I've been on here and I need some advice. I've been in a flair for quite some time. The past week or so no matter how much I sleep I need a nap in the day at some point. Does anyone else get like this from time to time with UC.

I've had UC almost my entire life. But never really understood the

tiredness of it all.

Thanks for any answers.

Donna turn

Posted 7/19/2009 1:36 AM (GMT 0)
I was like that when I was losing a lot of blood. I apparently became anemic because of this fun condition. Maybe you should get a blood count to see if that could be the case. Feel better!
Posted 7/19/2009 1:43 AM (GMT 0)
I saw my GASTRO. doctor the other day and I am going for blood work on Monday.

I know this disese is so much fun ( sad face )
Posted 7/19/2009 2:57 AM (GMT 0)
I am always tired too. I went to the doctor and I was very anemic but even now that my blood comes up normal, I still find myself more tired than I should be. I hope you get to the bottom of this and beat it. I've given in to living a life of fatigue
Posted 7/19/2009 4:32 AM (GMT 0)
Maybe it's the UC or perhaps it could be something else. Might also have the doctor check for any thyroid issues. Earlier this year I was tired all the time and I could literally sleep anytime and anywhere. I had my blood checked and my Vitamin D levels were really low. Once I started taking some prescription-strength Vit. D supplements to get me back up to where I needed to be I felt like I had so much more energy.
Posted 7/19/2009 7:29 AM (GMT 0)
I loose all my energy when I'm flaring, both due to the inflammation and lose of blood.

Tiredness is a symptom of inflammation.

Inflammation stimulates the immune system, which reacts by producing large numbers of white blood cells and antibodies. All this takes much energy and can result in chronic fatigue.
Posted 7/19/2009 12:12 PM (GMT 0)

subdued said...
I loose all my energy when I'm flaring, both due to the inflammation and lose of blood.

Tiredness is a symptom of inflammation.

Inflammation stimulates the immune system, which reacts by producing large numbers of white blood cells and antibodies. All this takes much energy and can result in chronic fatigue.

I didn't realise this was the reason for tiredness with UC - thanks! It's good to at least know why I feel as tired as I do. It's got considerably worse for me the past couple of weeks as I've been coming off the Pred and I find it hard to function most days. And if I get too tired I end up shaky, lightheaded and headachey...not fun!!
Posted 7/19/2009 7:35 PM (GMT 0)
     Have your blood count drawn.  I am also very fatigued but the doctor increased my 6MP to 100 mgm.  He wants that white count down.  When I started this flare in May, I was on 50 mgm of 6MP but my white count had gone up to normal level of 4.0.  My doctor explained to me that at this level my immune system goes on high alert and for some reason or other starts to attack itself smhair .  This make sense?  Guess it does.  Anyway, a few weeks ago my white count was down to 3.1 and that made doc happy.  Still in a flare though.  That itty bitty part of inflammation in my rectum is stubborn!  Not bleeding anymore though.  Only going once or twice a day, but still feel that discomfort.  Wondering if an ileostomy would help.
Posted 7/20/2009 3:01 AM (GMT 0)
Hi Everybody,
Thanks for all your comments. I will get my blood work tomorrow. I thalsimia. Sorry don't know how to spell it. So I can't take iron pills so that could be another reason I get even more tired in a flair up.
So i'll see how all the blood work comes out :-)
Posted 7/20/2009 3:25 AM (GMT 0)
I'm tired 75% of the time & my bloods generally test o.k. Based on past threads discussing fatigue, I'd say most of us UC longtimers experience it off & on whether we're flaring or in remission. Glad that extra vitamin D is helping Scrap Girl-- but beware of taking it in the form of Calcitriol, which made me very sick a few yrs back. Vit D is toxic at high levels. / Old Hat (30 yrs with left-sided UC ... [etc.])
Posted 7/20/2009 9:50 PM (GMT 0)
Maybe you could try B-12, in pills or shots?

I would get tired, too, and just let myself indulge in those naps. Can you do that?
Posted 7/21/2009 12:12 AM (GMT 0)

Christine1946 said...
     Have your blood count drawn.  I am also very fatigued but the doctor increased my 6MP to 100 mgm.  He wants that white count down.  When I started this flare in May, I was on 50 mgm of 6MP but my white count had gone up to normal level of 4.0.  My doctor explained to me that at this level my immune system goes on high alert and for some reason or other starts to attack itself smhair .  This make sense?  Guess it does.  Anyway, a few weeks ago my white count was down to 3.1 and that made doc happy.  Still in a flare though.  That itty bitty part of inflammation in my rectum is stubborn!  Not bleeding anymore though.  Only going once or twice a day, but still feel that discomfort.  Wondering if an ileostomy would help.

that is weird, i thought 3 was considered low and 4 normal/low.

Posted 7/22/2009 4:45 AM (GMT 0)

Peety said...
I would get tired, too, and just let myself indulge in those naps.

Same here. I figure my body needs the extra rest.
Posted 7/22/2009 4:57 AM (GMT 0)
I love my naps, too. I joke I could fall asleep standing up if I could lean next to a wall. I take Vitamin D-3 because I don't get in the sunshine much. I can't take iron pills at all so I try to eat liver at least once a week and vegetables high in iron. I've been borderline anemic all my life and I haven't tried the B-12 shots yet, but my Dad swore by them.
Posted 7/22/2009 7:27 AM (GMT 0)
I have the same problem with being tired and needing the extra sleep. The loss of blood does tend to cause tiredness. I would recommend taking iron pills daily. Most likely the blood loss has made you somewhat anemic. I started taking iron daily and the tiredness began going away little by little each day.
Good luck
Posted 7/22/2009 1:28 PM (GMT 0)
Yep. Same as everyone here. Always tired. I'm not flaring right now, feeling almost 'good' or 'normal' actually. I take B12 and iron daily. I have been for at least a year now. No change...
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