HealingWell
Search Close Search
☰

Quality of life questions...

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/29/2009 4:13 PM (GMT 0)
HelloKitty-I have an ileo, and fries and bread do thicken our output up.

Im just curious for those of ya'll doing the diets. Do you not consider that giving up some of your quality of life by limiting what you can eat so much? Like one of you said you cant eat out at all.
Posted 7/29/2009 4:33 PM (GMT 0)
I would be giving up more of my life if I was ill and not being able to go out of the house. I can live with out going to reastaurants but I cant live with not being able to work or do anything else. I cant live with that pain that I had during that flare. I will try anything but that, it was horrible. the left side of my colon was so painful. then when i went for walks my guts hurt so much they felt like they were going to fall out of my body. Its a harder life and i wish I only celiac disease instead of this. then all I would give up is gluten. or i wish i only had ibs then all i would have to do is combination eating. oh i have this. but i should be thankful i don't have ms (as far as i know) or that i don't have cancer (yet, please keep praying)
Posted 7/29/2009 8:05 PM (GMT 0)
Accutane causes UC because it destroys all the bateria, good and bad. Then the yeast takes over in your colon and you develop UC. So there is science to it. The same science that requires us to take probiotics, especially when taking antibiotics, so we don't kill off the good bacteria.

You might find more useful advice on your lack of energy from a naturopathic doctor. It was an important issue for my doc, and something he seemed to work on with a lot of his patients.

OMG, lettuce is tremendously hard on digestion. It's a common trigger for UC'ers. Sorry HelloKitty, I really don't mean to pick on you but some of the raw food logic just floors me.
Posted 7/30/2009 3:32 AM (GMT 0)
well what i actually meant was, the original poster was considering surgery to improve his quality of life.
And part of the reason i chose surgery was because there were so few things i could eat.
it seemed giving up more foods was worse, for me anyway, than having surgery.
Posted 7/30/2009 3:58 AM (GMT 0)
Hey all, original poster here.

-summerstorm- I totally understand where you're coming from. Quality of life can mean so many different things to different people. I have just learned quite a bit from this one post. I have never approached my disease with a diet, it's always been medicine. I would like to believe that with care, I can have energy and be in remission. If in time though, I found myself to be missing half the things a normal person enjoys, I would seriously consider surgery if it promised me more life enjoyment.

-Peety- With accutane wiping out all bacteria, would you say it's causing the ibd, or setting forth a disease that was lurking in the shadows already? I know it does little use to worry about it now, but understanding this might help my peace of mind somewhat. I plan on asking my doctor about it next week.

Thanks to all the posted!

Holding Hope
24 year old male
UC, diagnosed 2003
6mp 100mg/day
Pentasa 250mg pilles, 4 pills 4x a day
Posted 7/30/2009 1:40 PM (GMT 0)
You have to have the genetic predisposition for UC in order for a "trigger" to set it off. It might be that ACCUTANE triggered your UC but it didn't cause it.

Sue
Posted 7/30/2009 5:00 PM (GMT 0)
holding hope- I think stress has a lot to do with getting into a flare for me. At this point in my life I work from home and go to school from home and my stress level has gone way down and I feel my UC is better controlled. I have social anxiety problems which is why staying home lowers my stress a lot. But exercise and relaxation techniques can help a lot of people with UC in my opinion.
Posted 7/31/2009 6:10 PM (GMT 0)
Dear HoldingHope. Sounds like others have recommended you check with your Dr to see if it may be the meds and to have your vitamin levels checked. You should have a talk with your doc about this and maybe he/she can find out why you are so fatigued. If you bleed with your colitis, you could be anemic.
Personally, I have found that antidepressants really help my moods and fatigue. I can get depressed, especially in the winter and on gray days. I have IBS too and the SSRI's make my colitis worse so I take cymbalta. I hope you can find an answer very soon for your fatigue. Good luck and keep us posted.
✚ New Topic ✚ Reply
12