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Ulcerative Colitis
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Posted 9/27/2009 5:19 PM (GMT 0)
Heres my situation, I went to my GI 3 weeks ago telling him I am having my worst symptoms since being diagnosed in June 2008. The meds I was on were not working anymore. I used to take mesalamine enemas and they worked great but this time I couldn't hold them through the nite. He scheduled me for a colonoscopy this Friday cuz he was booked up until than and I said so I am suppose to be in pain till then. It will be 4 weeks this Friday and I am at the point of going to the ER. I HAVE LOST AROUND 15 POUNDS in this time waiting, can barely go to work, can't sleep, can't eat anything so I am always hungry so I feel dehydrated and this causes headaches. Should I go to the ER. What will they do if I do go? Any thoughts would be appreciated and GO GIANTS......
Posted 9/27/2009 5:27 PM (GMT 0)
I'd say go to the hospital. I waited til I almost passed out from going to the bathroom all night. I'm sure they'd run all sorts of tests on you, but at least they are taking care of your issues.
Posted 9/27/2009 5:45 PM (GMT 0)

Go to the ER; it's probably the only way you will successfully keep up with hydration.  I had to do the same too year ago.

Sue

Posted 9/27/2009 5:46 PM (GMT 0)
Yup, I agree - go to the ER. You sounds pretty miserable, and they can at least get you hydrated. Don't let yourself continue to slide downhill just because the doc can't see you until Friday!
Posted 9/28/2009 3:12 AM (GMT 0)
I agree-go to the hospital if you haven't already. I waited until I had to practically be carried in, and I should have gone sooner. It was only a matter of days when I got to that point-I was functioning one day and not at all the next. The downward spiral was fast.

Good luck to you-please keep us posted.
Posted 9/28/2009 1:26 PM (GMT 0)
Yep, go to the hospital. I passed out before I was sent to the emergency room. Take care.

Posted 9/28/2009 4:44 PM (GMT 0)
What else are you doing to manage your disease besides taking steroids now? What are you trying to eat? Are you drinking as much water as you can stand? Or Gatorade or something like that? Can you stay home from work?
Having the colonoscopy is not going to relieve your pain, either, so you need to be sure you are doing everything YOU can do now.

I'm not a big believer in going to the ER. They usually can't do much for you either unless you are bad enough that you need surgery. They will give you IV steroids, might as well take them at home and be comfortable there.
(How big a dose of steroids are you taking? sorry, I'm sure you've already said somewhere)
Posted 10/3/2009 1:10 AM (GMT 0)
I am home from the hospital and feel alot better. They r putting me on 35mg of pred for 5 days than tappering of 5mg every 5 days and I will b taking Lialda twice a day. being in the hospital was no fun for 6 days, I have never been in the hospital overnite before this. They will do a scope in a month 2 check me out again.
Posted 10/3/2009 7:18 AM (GMT 0)
Hi..welcome back from the hospital. Did they do a scope there?

Hope you feel better soon.

q
Posted 10/3/2009 3:28 PM (GMT 0)
Pfft. I went to the ER in a flare once, before my diagnosis. The triage nurse told me I had Munchausen's and the doctor diagnosed me with gastroenteritis.
Posted 10/3/2009 4:13 PM (GMT 0)
Glad to hear you are doing better! Hope the meds work for you.
Posted 10/3/2009 5:09 PM (GMT 0)
I am so glad you went to the hospital. I learned that the best way to avoid the hospital is to really be specific about the level of pain when talking to the GI's office. I use a scale of 1 to 10. 1 is no pain, 7 is giving birth and 10 is passing out from pain. This always gets me a same day appointment when the pain is a 7 to 9. My flares become extreme within days with blood loss that sometimes needs replacement so I also tell the office appt. person about that. They don't have our medical records in front of them when we call and need all the info we can give them. I hope your road to remission is fast. Did they give you any iv antibiotics? I found that really helped speed up my recovery.
Posted 10/4/2009 12:08 AM (GMT 0)
Glad you are home, and no longer feeling so miserable!
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