HealingWell
Search Close Search
☰

Just got the Prometheus results back

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/29/2009 5:09 PM (GMT 0)
Hi All,

Actually I got the call from the family doc yesterday (FINALLY) saying the UGI/SBFT was clear, and got the call from the GI today saying the Prometheus test was consistent with UC.

Just thought I'd share.
Posted 9/29/2009 5:27 PM (GMT 0)
Well, I guess that's another piece of the puzzle.
What do UGI and SBFT stand for? I'm not familiar with those acronyms.
Posted 9/29/2009 5:51 PM (GMT 0)
UGI is upper gastrointestinal (it's a series of x-rays after you drink barium) and the SBFT stands for Small Bowel Follow Through, which just means you drink more barium and they x-ray the small intestine as well. I had this done b/c my original dx was idiopathic colitis (probably b/c I was so inflammed during the scope) so the GI wanted to rule out Chron's which is now ruled out between the x-rays and the Prometheus.

The surgeon who did my original scope, my family doc and the GI all felt I had UC b/c of my symptoms and the location of the inflammation but Chron's needed to be ruled out b/c it's not unheard of for there to be Chron's in the rectum and only in the colon.
Posted 9/29/2009 5:56 PM (GMT 0)
Thanks! I could have googled, of course, but it's easier to ask sometimes! I'm glad I didn't have to have those done....the barium just sounds icky! :) My GI felt the pathology was clear enough to rule out Crohn's (no granulomas, etc).

So how are you feeling? Symptoms going away?
Posted 9/29/2009 6:03 PM (GMT 0)
The barium was VERY icky and ran right through me and set me back in terms of getting over this flare...boo! I guess that was the problem, I was doing really well until that day.

But, yeah, the symptoms are getting better, I'm no where near as bad as I was in July right before my scope. I'm thinking though, as we've discussed before that I might need the rectal meds to put me over the top. The Asacol and probiotics are helping for sure but I'm not convinced it's going to be all I need. I'm on the min dose of Asacol though, it's been 4 weeks since I started taking it but had the UGI 2 weeks ago and I feel like the Asacol had to start all over again as I was back to bleeding and mucus right after.

But I'm new at this so who knows!
Posted 9/29/2009 6:10 PM (GMT 0)
Glad things are getting better! I am kind of similar (in having a setback, anyway), because I was so, so, so close to getting into remission, then caught a tummy bug from my son, which threw me back into the flare. I ended up having to go on pred at that point, b/c I had an interview coming up I needed to be well for.

And yeah, we've talked a lot about rectal meds! If it were me, I'd prefer adding the rectal meds before upping the Asacol. I started at the max dose, but I was going 15-20x's a day when I was diagnosed and was about 25 lbs below my pre-pregnancy weight (this was about 3.5 months post-partum). So my doc really hit it hard. I'm still at the maximum dose (even though I switched to Apriso) and my GI wants me to stay at the max dose until I've been in remission for a year. I see him again in January, and will ask again about reducing, so long as I remain blip-free until then!
Posted 9/29/2009 7:15 PM (GMT 0)
See, my symptoms are not that severe, I don't enjoy them but I've never gone more than 6 times a day and those were my very worst days.

This makes me think that's why my doc is being so conservative.

And I hope everyday that I can just use the 5-ASAs and control this.
✚ New Topic ✚ Reply