Sometimes I am just sick of being sick

Somedays I am ready to throw in the towel, go to bed and stay there... I am tired of fighting. Everyday is different ...some good ,some bad. I am normally a very positive thinker but today I am exhausted and cramping and lots of D. How do you guys get through the bad days? I keep thinking I will be in remission soon but this has been going on since May. I am trying to avoid going on Remicade (because I am afraid of the side effects)but the Dr. said it is my next step since my body doesn't metabolize 6mp.  Thanks for listening.

Now? I would cuddle and get tummy rubs from my boyfriend. But before when I was by my lonesome, I'd just do what needed doing. Stuff never depressed me then, I was very neutral, not much emotion. I might be more affected now though. So yeah... all I can reccomend is doing what you gotta, and cuddling.

I thought that your body did either 6mp or Imuran. It can't do either one?

hiya

ive been in pretty much constant flare for 2 years now i can only eat chicken breast and boiled potato and drink bottled water the only relief i have is prednisolone which would reduce my symptoms while i was on 8x5mg tabs by the time it was reduced (1 tab a week) to 5 or 4 id be back in full flair. i only get given these for 8 weeks at a time every 6 months
going out other than into the garden is impossible

all other times i would just do as little as possible remaining seated in an old office chair,i think the angle helps slow things down (probably desperate thinking there) i would pick at my food the whole day so not to eat too much at any one time.

above all i try to stay focused on the fact that no matter how bad things are now the next day could be a better one.

i would make the most of every good moment during the day (not many of those in a 20 trip to the toilet day) either watching cartoons or something else light hearted/funny (tom and jerry,bugs bunny etc)

i know its hard to stay positive but concentrating on the good things you have really seems to help

even my 4 cats really help me, throwing bits of paper to enjoy watching them dive around the room etc

i even bought a laptop for bathroom use just so while im stuck there i can at least watch something on youtube or browse.

it may sound crazy but while this is a horrible thing to have it has helped me appreciate alot of things i once took for granted

music helps also by making me feel other emotions other than pain from cramps etc everything from anger to just having a bit of a blub

im not saying this will work everyone as everybody is different but it might help you think of something that will work for you

ps sorry for the wall of text. once i get started with somethings i find it hard to stop :>

Yeah... do the bare minimum. Watch TV, read books, talk to family/friends.

I hate it, too. I was so active a year ago and didn't appreciate it as much as I should have :-(

You are definately not alone in dealing with this that is for sure! Many of us can really relate to the whole 'I am sick and tired of being sick and tired' kind of thing. I've had Uc for 17 years and in that whole 17 years I have had only a small handful of short lived remissions. It is very frustrating. I've managed to finally get my Uc under control only to have other issues pop up as I age. Right now I am fighting some kind of arthritis issues so it was like another blow that I started doing the why me's again.

I am a very upbeat and optmistic person. I don't like to have things get to me. But once in a while I have a pity party and just do nothing. I read or watch tv to get my mind off things. I am usually pretty quiet when things are getting to me and my husband knows this. He will ask me what is wrong or sometimes he will just do something extra nice for me without me having to ask him.

You are entitled to your own pity party but as hard as it seems at times, you just need to pick up the pieces and dust it off. Remind yourself of the good things you have in life and that it could always be worse.