Posted 11/12/2009 2:09 PM (GMT 0)
I feel your pain. I am in the same predicament. Sadly, I believe I am now steroid dependent. Right now I am suffering my third flare in eighteen months. What is the dosage of prednisone that you are taking? May of 08 I was hospitalized and remained on prednisone for seven months before being able to wean off. Seven months later, May of 09, started another flare, on pred till end of August. Two weeks ago, boom, again flare. I was scheduled for a colonoscopy next week but the doctor won't do it while I am in this condition...very bad ulcerative proctitis. He stopped the 6MP...been on it for seven years and it is doing nada. Waiting for insurance approval for Remicade...tired of living like this. I saw my doctor on Tuesday...he told me to take 60 mgm of Pred that day (I was on 30 for just a few days), then yesterday he told me to drop it to 40 mgm and remain on the 40 mgm until I see some improvement. My symptoms are the same as yours....urgency, mucus, blood. Afraid to eat anything and now my hair is starting to fall out...most likely from the prednisone.