Posted 11/29/2009 10:33 PM (GMT 0)
OH YEAHHHH!!!!!!
I am so happy for you!! Wow.. remember when we were talking about how sick we were and hoping Remicade would help us? And how we had basically the same extent of disease that it would be neet to see how each of us does?? WOW.. now here we are!
I am feeling GREAT U/C wise... I have no blood, only going 1-2 times a day.. normal poopies... YEA!
The bad news is I started having a complication and I MIGHT have to go off Remicade... I woke up a couple of weeks ago with my right hand numb and I couldn't move it.. I thought it was because I slept wrong and pinched the nerve and all... and my hand did wake up some, but it has never completely gotten all the feeling back and in fact, it has spread up my arm, now my right lower leg and foot are numb, not completely, but it feels a bit numb and tingly, and just yesterday it has spread to the right side of my face... I've also been getting these electical shock things.. mostly in my legs and feet.... VERY painful when they happen, but it only lasts a few seconds... I have been dropping things, and my equalibrium has been off, and I lose my balance kidna easily... I have to go to my Dr tomorrow because everybody is really concerned I have MS.. It hasn't slowed me down at all, but it mostly is a nuisance not feeling all the way on my right side... weird!!!!
about 10 years ago, I was having similar symptoms (not numbness, but the shocking feelings) and they suspected MS back then and did test me by doing a brain MRI with contrast. They couldnt find any lesions so they said I didn't have it and that was the end of it.. But I'm afraid that maybe I DID have it and now the Remicade has brought it out, since my immune system is compromised.. I don't know for sure, but I'll hopefully find out before my next infusion, which should be Dec 10th... I'm almost afraid to have it now... not for UC... but if I do have MS, I'm afraid it will make it much worse... So we'll see.. Geez.. it'a always something! But.. for now U/C wise.. I'm great!