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Time for a new GI??

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Ulcerative Colitis
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Posted 12/15/2009 6:30 AM (GMT 0)
  I recently posted about doing a CT Enterocylsis test.. Well I was given the choice to do the test and initially agreed I would.  After researching the test I decided against it because it is so unpleasant. The test was going to be done to rule out Crohns because the blood test was positive for IBD but was consistent with Crohns. My GI even said it wasn't likely Crohns but wanted the test anyway. Anyway after deciding not to take the test my GI will not prescribe Lialda like he said. I have been treating this mess with natural products with some pretty good results but the last couple of days the urgency has started to come back.  No "D" yet but it can't be far behind. I was hoping to start the Lialda before the holidays so I can keep myself from going into a full flare. I have called my GI and can't get past the lady answering the phone who is very rude. I guess it is time to find a new GI ! I lost over 40 pounds from the first flare and can't afford to lose anymore.  Why does it have to be so difficult..Does anyone have a GI they would suggest in the Indianapolis,Indiana area?
Posted 12/15/2009 8:34 AM (GMT 0)
Well, that sucks! wth?

Interestingly, even if your small intesting is free of any disease, it doesn't mean it's not what you have in your colon.

I think you should maybe make an appointment with him to have things discussed and clarified for both of you. As well, maybe he can offer you other options.

q
Posted 12/15/2009 10:34 AM (GMT 0)
If you have a GP go to him/her and ask for your lialda. Explain you can't get in to see a new GI and you are going into a flare. You DO NOT need a GI doc to get these drugs prescribed if you have a decent general practitioner. Then you can find another doc.
Posted 12/15/2009 12:09 PM (GMT 0)
I agree with Dr. A on this one. Go to your primary doctor, explain the situation, do not lie but tell your primary that you are in search of a new GI. And yes I do think you need a new GI. It sounds like this doctor is getting mad because you didn't do this test and is taking it out on you. If a doctor can't understand your fears and reasoning for not doing something then it's time to find another doctor. Remember, this is your life and your body. You can choose what you do with it and it shouldn't be mandated by a doctor. Doctors are there to guide you and to help you, not control you and make you do things that you're not comfortable with.
Posted 12/15/2009 4:13 PM (GMT 0)
I agree with Red and Dr-A. I hope you find a new GI ASAP. I don't think there's any reason for you to have to go through that test. Honestly, I don't think it matters too much whether it's UC or CD, if the CD is limited to the colon, unless you're contemplating a colectomy.
Posted 12/15/2009 4:19 PM (GMT 0)
Sounds to me like your GI may want to try out his new toy. Prescribing Lialda isn't dependent on whether you have Crohn's or UC, so he's out of line here. If he's declining to continue treating you, consider reporting him to your state medical board.

Hopefully your PCP will be more caring. He might even be able to help you get in with a really great GI doctor.
Posted 12/15/2009 5:34 PM (GMT 0)
Great advice....I agree with all, and I'll suggest you ask for rectal meds, even suppositories for now..

q
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