&@#$!!! darn it!

Sorry dear. Maybe it was that piece of fish just kidding.

After my 8th or 9th trip to the bathroom this morning, I gave in and picked up  my prescription at the pharmacy and took my first dose. I don't think I had much choice - I was constantly running to the toilet with incredibly bad cramp pain and lots of bloody mucus. Now I feel sickish to my stomach. Maybe it's from the wine or maybe the pred or maybe the combination of all the stuff I've taken.

Sorry you're feeling hopeless. I hope you feel better soon.

What other meds are you on at this time....still the asacol and the Rowasa?

It's not sulfa in Rowasa-- but SULFITES=chemical preservative that also causes allergic reactions for many people, not just IBDers. Sorry that you're feeling somewhat bad again. Don't quit your Lialda, though. Try to be super cautious with your diet for the next month, at least. That was what helped me to finally recover from my last flare in March. I was feeling pretty desperate, like the brandname Colazal was not helping the way it originally did (formula had been somewhat altered to curb side effects). So-- I decided to eat only what I knew to be totally agreeable to my colon, however boring that might get to be. It worked for me-- not right away but I kept at it. Plain boiled white rice is my mainstay. See what you can do for yourself along that line. Worth a try! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

Old Hat-Not planning on quitting Lialda, if anything I'd just switch back to Asacol. I did have some stuff to eat on New Year I probably shouldn't have, but I've been cautious since that and have been feeling a bit better-less bleeding today and I only went once. I find chicken, fish, oat bread, oatmeal and certain veggies to be well tolerated for me. I just wish I was living with my boyfriend again cause he's so much better at accommadating my diet than the parents.

Christine-I've considered it, but I'm pretty young right now so I'm worried about becoming resistant to biologics at a young age. I would probably have a long conversation with the doc about it first...but I hate pred enough where I'd rather be on something like imuran, humira or remi rather than it. I'm also considering trying TSO right now.

My doctor just put me on sulfite free rowasa enemas.

I wonder if you're taking a strong enough probiotic (or good enough quality) since I started taking probiotics I haven't had a single mouth issue and I used to get very deep and painful ulcers in the roof of my mouth...and canker sores too but not anymore.

Pred is just a booster drug until your maintenance meds kick in, so it's not surprising that as you tapper or come completely off pred that symptoms re-appear.

:)

So, you are in a stable situation?

Have you finished your degree so that you can find a well paid job?

Can anyone who believes in God ask God why we deserve UC? :(

againstodds- Yes, I've got my degree, but I'm waiting to hear back from grad schools so I've been working temp stuff to hold me over.

Nuffinbutttrouble-You realize lemons have sugar right? Anyway, I could give it a try but it'd be difficult living with other people. I usually don't have too much excess sugar anyway, not compared to most of the people I know.

I went well over a month without sugar/carbs and it didn't help me. Just thought I would share.

Malkavian said...
(...I'd love to take VSL or florastor but I can't afford them.)

vsl#3 is the most affordable probiotic I've been able to find:

 

450 billion bacteria per packet; each packet cost at most $3. So it costs $0.07 for 10 billion bacteria in packet form.

 

Compare that to Culturelle sold at Target (i just picked this as an example): 10 billion bacteria per capsule; 30 capsules costs $18.59. So it costs $0.62 for 10 billion Culturelle bacteria in pill form

 

Vsl#3 pills have 225 billion bacteria per pill. 60 pills cost $48.50. So it costs $0.36 for 10 billion vsl #3 bacteria in pill form

 

Plus: VSL is freeze dried, has 8 strains, and shipped and stored cold to assure the bacteria remain alive

 

Now I get VSL#3DS mail order. With my copay I end up paying $0.008 for 10 billion vsl bacteria

 

you could split the packets up or buy the pills, either way vsl is cheaper

pb4 said...
It likely takes longer than a well over a month without sugar/carbs to fully leave your system, and I'm sure it varies for each person...all I know is I'm better off not eating refined sugar and bad carbs and not just in the bowel department but overall health as well, it's amzing, almost ironic how not eating sugar actually gives you more energy even though when eating sugar gives you a rush of energy but then you crash from it, not eating it at all = continuous energy, healthier skin, hair and nails and a great nights sleep everynight and waking up refreshed. Just my experiances.

:)

Well said pb4,

But it's not only that, somethings we eat things that we think is ok but in reality they contain sugar; it took me several months to discover that even canned goods and certain meats (processed meats) contain sugar. Now, I can occasionally eat 'certain' sugary foods because my body has been detoxed and can handle it...yet still, avoiding sugar and excess carbs isn't enough in my case, I also take probiotics and herbal bacteria killers as well...plus I exercise.

By avoiding sugar, taking probiotics, taking herbal parasite killers and exercising...I have managed to COMPLETELY HEAL MY COLON, which was once covered with ulcers. Once a blue moon I might get my colon flushed if I don't stick to my diet and symptoms return; but my colon is 100% percent normal yet blood results show that ulcerative colitis is still present.

Basically, I have colitis without the inflammation if that makes sense.


NBT

NBT, I don't eat anything processed or any fast foods, I get my sugars naturally from fruits and veggies.


Burli, everyone is different, and there's definitely no harm in encouraging anyone to give up refined sugar...I did it and had no issues during the process and I'm willing to bet most people don't. Clearly we need sugar to keep our glucose levels in check, and as I mentioned, I get my natural sugars from fruits and veggies. I don't think anyone is trying to "play doctor" I think many people here give good advice especially advice about trying to eat as healthy as possible, bad advice is encouraging people to eat refined sugar since most know the long term damaging effects it has on the body...it's an addiction for many, reading posts on here show how obvious it is, plus I used to be addicted to it myself so I know what denial is from my own experiance. No one "needs" refined sugar if they eat/drink fruits and veggies then your body gets to function properly not on false sugar rushes that make you crash...eating an apple will not make you crash, eating/drinking refined sugar products will.


:)