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Rowasa making matters worse?

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Ulcerative Colitis
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Posted 2/18/2010 10:34 PM (GMT 0)
I am not sure. I am back on pred, using the Rowasa at night and supposed to use the Canasa in the AM, but can't keep it in very long because morning is a very active time for my bowels.

Anyway-since I have started using the enemas, I am having an increasingly hard time retaining them through the night, and when I get up in the morning, I am in terrible pain with several episodes of bloody D.

Later in the day, like towards the afternoon, my movements harden up-not hard, but softly formed (still bloody, but not like in the AM). They usually stay this way until bedtime. (I still have the pain, urgency and severe nausea with BMs, not matter what time of day, unfortunately. Right now I am at about 6-8 BMs a day, all bloody, and all D in the AM.)

So could it just be the time of day? Mornings are always hardest on me during even minor flares. Or could the Rowasa be making matters worse? It is so hard to tell...but my mornings are awful!
Posted 2/18/2010 10:56 PM (GMT 0)
Rowasa bothers me as well, unless I'm in a super horrible flare. I think I have a sulfite sensitivity.
Posted 2/18/2010 11:46 PM (GMT 0)
Interesting. I have found the Canasa to be helpful in the past, but not really anymore. But the Rowasa doesn't seem to be helping much. I am also allergic to sulpha, as you are, but that isn't the same thing as being sensitive to sulfite, right?

Blah. I wonder if I should try going without it tonight and see?

Thank you for your input, Malkavian...
Posted 2/19/2010 4:41 AM (GMT 0)
That happened to me too...had to stop using rowasa. I don't seem to respond to any 5asa drugs.
Posted 2/19/2010 4:52 AM (GMT 0)
There's a difference if one is sensitive to salicylates OR sulfites. Since Rowasa has metabisulfates in it...that could be the reason. If one is sensitive to salicylates, that could aslo be a reason.

Supa....how long were you using the Rowasa? I hear there are now ones made without the metabisulfites as preservative...good news if that's your issue.
I don't know if the Canasa has it in them or not.

Just so that you know, digestive enzymes can create more diarrhea and some gas...that in conjunction with the VSL 3 could also contribute to the gas and multiple bms.

You have a few things that it could be....start with one.

quincy
Posted 2/19/2010 6:37 PM (GMT 0)
Thanks Q. I hadn't thought about any of that with the VSL3. I have to say, when I DON'T use the VSL3, I feel a lot worse with bloat and gas. But who knows-it is soo hard to know what causes what.

I decided to take last night off from the Rowasa and see what happened, if anything. My BM was better this morning. All of the other symptoms persist (and dang, had I ever forgotten about the nausea!!! I had to call them this morning to see about getting something for it because I am tired of feeling like I need to carry a bucket with me wherever I go), but I didn't have as much D or quite as much blood.

I have never had this issue with the Canasa.

Oh, and I have been using the Rowasa for about a week now? Things have been getting worse rather than better, but then I am also off the Humira now, and I am not sure what effect that has too, blah blah blah.

80schick-I have been on asacol for a long while now and not had problems, and have used canasa with good results in the past, but then all of a sudden, the rowasa seem to be problematic for me! I have no idea why. I'm sorry you can't use the 5ASAs. It is always something, isn't it? How are you doing with your current regiment?
Posted 2/19/2010 8:16 PM (GMT 0)
Right now, I am tapering off the cortenemas after my Christmas flare. I'm down to one every 3rd night. So I'm doing Night 1: Cort, Night 2: nothing (what a concept) and Night 3: Rowasa.
I had decided to give myself one night of no enemas as an experiment. The day after I do cort or nothing, I have 2 bms. The day after Rowasa, I have 4.
I think some of it is the Rowasa itself. As I understand, it it topical in how it works and it not absorbed like the cort - so it also needs to be expelled.

Or maybe I'm slightly sensitive to it.

Years ago I couldn't tolerate them at all, then this past year they've seemed to help. As you mentioned, Laura, the rules do seem to change... frustrating sometimes.
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