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Ulcerative Colitis
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journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 4:29 AM (GMT 0)
GI is not calling me back. He once told me don't make a judgment by one day's BMs. Now it's clear my rectum is inflamed. (darn urgency) Can the rectal inflammation be caused by
constipation?
I've upped my asacol. Can this inflammation die down with enemas?
Please advise. Nothing is ever the same with this disease. EVERYTHING is a first for me, so far.
Can it get worse fast -- (like before the GI calls me back.)
No pain right now, maybe it's because I upped the psyllium husk powder to three tbs per day. Formed stools, hemmie blood (but just not absolutely sure. I feel like taking a macro photo and bringing it to the GI)
Ellen
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/16/2010 4:34 AM (GMT 0)
You NEED to be on rectal meds.....he's right to not make a judgement about
one day of symptoms. Remember that limited rectal inflammation can cause constipation, and of course...urgency. You're flaring, still.
Rectal meds...if you have the Canasa....please start using them.
q
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 5:24 AM (GMT 0)
Ah, inflammation can CAUSE constipation... that's making sense rather than the other way around. Heather, whether you are right or wrong, I don't know what I'd do without you. I was heartbroken tonight. Now I'm just bummed out.
Susiebuddy
Veteran Member
Joined : Feb 2005
Posts : 1391
Posted 3/16/2010 5:28 AM (GMT 0)
Hey Ellen
When I first got sick, my FIRST symptom was constipation.. then the blood started.. It was because of the inflammation that I was becoming constipated... I have never had liquipoopie with U/C, sometimes it's a bit on the loose side, but never total D...
I'm also with Quincy that you need to be on rectal meds.. they will help with the inflammation and hopefully get things settled down... I hope you feel better soon :)
songlady
Veteran Member
Joined : Aug 2009
Posts : 3840
Posted 3/16/2010 11:07 AM (GMT 0)
And to answer your question, yes, it is possible that enemas will simply take care of it!
As you noted, nothing is the same with this disease, flare to flare, person to person - so I sure wouldn't "guarantee" the enemas would fix it, but they have, for me.
Ugh Just Ugh
Veteran Member
Joined : Jan 2010
Posts : 1004
Posted 3/16/2010 2:26 PM (GMT 0)
Yeah, if you're getting intermittent D I'd say use your Canasa every night until you can talk to your doctor and ask for enemas to use. Before this big flare I was doing Mesalamine enemas every night and had an RX for Canasa that I would add on in the morning to squash little flare ups. I wouldn't panic you can get this under control, you're doing the right thing being proactive about
your meds! :o)
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 3/16/2010 3:35 PM (GMT 0)
Honestly, I still think you are not constipated, given that you were still having BM's on a daily/every other day basis. (Right?) I mean, constipation, to me, means several days w/o a BM. I get a little bit constipated when I travel...my body doesn't like to let me poop on an unfamiliar potty, I guess. I really think what you are experiencing is tenesmus, which is the feeling of needing to poop, even if nothing is there. It's also a symptom of inflammation.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 4:37 PM (GMT 0)
You guys prevent me from popping klonopins and I appreciate it. Today, after a little splash, the bowel movements were very formed, but there was a lot of urgency.
Doc hasn't called me back which equals no rectal enemas. I have been using Canasa religiously.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 4:44 PM (GMT 0)
You're telling me what the symptoms are of an inflamed rectum. But What triggers the inflammation of the rectum?
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 3/16/2010 4:47 PM (GMT 0)
If you could figure out what triggers inflammation (and therefore, why we all have ulcerative colitis), you'd be rich. Nobody knows. Some people have suspicions of what triggers flares (ie, change in season, antibiotic use, etc), but some people don't. And there's no one thing that triggers it in all of us.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 4:57 PM (GMT 0)
Fruitgirl, I started an anti-depressant (Wellbutrin) and almost immediately the constipation and other bad side effects of drug started and this Constipation is a major side effect of wellbutrin, but is it possible the introduction of an anti-depressant triggered inflammation? It's hard to believe the timing of the constipation is just a coincidence.
Ellen
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 3/16/2010 5:01 PM (GMT 0)
Honestly....I think you're over-thinking it a bit. How long did you go without a bowel movement? Also remember that there are several ups and downs that just happen with UC. Many people get just a bit of inflammation/slight flare pretty often without going into a severe flare. It seems that even quicny does, but she gets it under control quickly by upping her rectal meds.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/16/2010 7:22 PM (GMT 0)
Coincidence and I support the overthinking, but it's understandable. I would caution you, however, to not have the knee-jerk reactions, which can set you up for more obsession as to what's happening. You'll totally get lost in the process and make decisions that might not have anything to do what's happening.
Yes, I have ups and downs which might have something to do with my age and having UC for over 21 years. My emotional state will always be an issue, I'll never be free of that. Better, maybe..
Now, I don't have an issue with using my meds, so some may see that as a failure on my part...I see it as a way of functioning and minimising the possibility of flaring badly as well as hopefully keeping the liver disease in check and keeping my colon as long as possible especially from cancer.
I'm just at the tail end of my flu and finishing a 5 day course of zithromax. The stress of the coughing is ticking me off, but I started the enemas last week nightly and will go every second night this week. Just because..lol.
I'll soon find out if it's too soon.
Hang tough Ellen....call your doctor again and leave a message for him to please call in a prescript
ion for Rowasa because you want to try them for a few months.
q
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 7:57 PM (GMT 0)
Will call doctor, but unless absolutely urgent, he may not get back to me til Friday. Do you become dependent on enemas physically? He wants me on as few meds as possible and I didn't have to beg hard for Canasa. He gave it to me when I started experiencing rectal pain hitting below 10 mg on pred.
In terms of this inflammation, I was constipated for three days after I went on Wellbutrin.
Oddly getting off Strattera (ADD/anti depressant) and the attendant severe constipation just dissippated gradually, (I was sooo happy) then more and more and more until it became massive diarrhea (first flare). See the anti=depressant connection in that one too?
Weird how the antidepressants became false leads for different reasons. Even had the doctors going down that route.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 8:08 PM (GMT 0)
OH MY GOD. He prescribed me Analpram. He didn't call me back!!!
What's with him?
I told him rectal, raectal, rectal pain. I said I wanted rectal enemas.
What more can I do? He's the only GI in the HMO and I really like him.
Did he prescribe me the wrong thing?
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/16/2010 8:14 PM (GMT 0)
Well, they're also a steroid suppository. Maybe will work for you. Or did he prescribe the cream?
If it's the cream, I guess you'll have to call him again. sheesh.
I don't get the doc...maybe you need to set up an appointment with him after you've tried these supps.
It might help you get off the pred.
Keep us posted.
q
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/16/2010 8:39 PM (GMT 0)
I'm not on PRED, Quincy -- thank God, haven't been since 1-15 .... I had been doing excellently.
Isn't it ridiculous? I left a message today that says, I'm comfortable today due to increase, I believe, in psyllium husk. The preceding pain and now, some diarrhea, nicely formed stools and ACCOMPANYING high speed urgency is coming from the rectum. --- rectal tenderness, I-N-F-L-A-M-M-A-T-I-O-N.
I'm not picking up this cream, right now. My anus, aside from some hemmies, feels fine, thank you.
grrrrrrrrrrrr
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/17/2010 7:59 AM (GMT 0)
for sure it's the cream?? and not suppositories?
what a goof...lol.
Definitely continue the canasa.
When's your next appointment with him?
q
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/17/2010 4:12 PM (GMT 0)
Six months from now. I just saw him and everything was hunky dory -- six weeks after stopping pred. A week after the appointment this started.
So today, there are many urgent trips to the bathroom, to move the bowels, some of it is gas and just stool covered psyllium husk gel casings (can tell cause it floats). The stool slips out quickly. There's no pain per say, but I know the rectum is tender because of the urgency (true?)
Normal for me is one to two BMS a day.
Not eating much, not much of an appetite.
So I'm delivering another message to him today that this is not an anal issue, but a tender rectum and I want rectal enemas to tamp it down now.
Is this the right message, Heather?
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/17/2010 5:48 PM (GMT 0)
I think you need to say I've been to the bathroom however many times and almost went in my pants because the urgency is so bad.
I'm desperate to do the Rowasa and at least want the opportunity to try them. The suppositories aren't enough nor is increasing the Asacol and I believe it's worth trying them before I have to do anything more extreme.
This distress on my emotional state is exacerbating that as well and I don't want to end up in the hospital a basket case just because I'm begging for some enemas.
or something along that theme.
Aside from telling him he's a dork for making you suffer for so long, thank him for his understanding.
q
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 3/17/2010 5:55 PM (GMT 0)
I wouldn't say "rectal enemas." I'd say "mesalamine enemas." It's much more specific.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 3/17/2010 5:57 PM (GMT 0)
What about
just Rowasa enemas?
q
fruitgirl
Veteran Member
Joined : Feb 2009
Posts : 7164
Posted 3/17/2010 6:28 PM (GMT 0)
That would be ok, too, except that a generic mesalamine would suffice, and with the way this GI seems to be, he might write the Rx for Rowasa and NOT allow a generic subsitiution, which could end up costing Ellen a crap-ton of money!
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/17/2010 7:29 PM (GMT 0)
Well, BEFORE I read this, I did fax him a letter with all that info you've suggested -- except without the emotional component and I did say rectal enema. (I'm sure he'll get it about
mesa enemas) and I did say, I'm curious as to way you put me on anal cream. Also, I said, I've lost appetite and am dropping weight. I think he's yanking out colons today and doing colonoscopies tomorrow. Hopefully, he'll see the fax before Friday.
He hasn't told me to up the asacol. Unfortunately, I don't have enough on hand to do that right now.
Thanks for your support.
journey2health
Veteran Member
Joined : Oct 2009
Posts : 2885
Posted 3/17/2010 7:48 PM (GMT 0)
Not that I'm in denial, but during this waiting period, I ask you: Any chance this rectal inflammation might tamp on its own?
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