Anyone have UC without D?

Quincy- I am curious what do you eat? what do you not eat? what bothers you and what makes you flare in your opinion?
what type of liver problems do you have because of UC if you dont mind me asking? how did you discover this...I didnt even know liver issues were related....

Hi....well, I eat pretty much what I want, but that doesn't mean I eat everything or what others eat. I also only have 2 main meals a day because I'm not working a full time schedule as I did years ago. Then, I had the same breakfast except NO coffee. I had salad with chicken, spaghetti, soup, lasagna or whatever for lunch. No dessert, no coffee. Only water.
For Supper I had whatever from chicken, fish, hamburger, salads, lasagna, dessert, coffee. I ate out at least twice a week or more for supper depending on what I was doing.

but now.....For breakfast I have a boiled egg, toast with marmalade and coffee....2 - 4 cups with 1% milk. I take 6 Metamucil capsules then after about an hour I take all my meds and vitamins.

For supper I have maybe chicken, salad, spaghetti, pizza, lasagna, perogies, teriyaki chicken, indonesian chicken, rice...veggies such as broccoli (give me gas), carrots, sweet potatoes, asparagas, mixed veggies...etc.
I have something sweet for dessert, maybe some vanilla yogurt with animal crackers or some chocolate...lol. I've found Activia yogurt isn't too bad as long as I don't have too much. Oh, and a cup or so of coffee. If I go out, I'll have salmon with veggies and a carb or a hamburger or something like that.
I take 6 Metamucil caps.

For a snack I might have some tapinade with Kashi crackers, some salsa & low salt corn chips....or just a piece of toast.

Around 11 I take my vitamins and meds.....about 2 hours later I take the probiotics.

The liver disease I have could be one, the other or both of primary sclerosing cholangitis and Primary Billiary Chirrosis. My blood tests lead to PBC, but the visual from the MRI says PSC.

I take URSO which is a bile acid to help keep the bile flowing because of the constrictions. I'm in early stages.

It was suspect about 13 years ago that I had it but I refused the ERCP test to confirm. I waited will an MRI test became available, and it was confirmed.

I'm not having any symptoms and the liver enzymes are back to normal. My cholesterol is high, but that's related to the liver disase.....or at least most of it is.

Hope this helps.
q

When you guys say you feel normal that gives me hope. I have not felt normal for almost 2 years. Not horrible flaring symptoms but just lingering urgency and going more than the aveage person and watching what i eat et cetc
Fruitgirl what do you eat?
I am hoping to feel "normal" soon and hopefully enjoy my summer with my son. ...get out there and do some photography...and other things i love to do. Sorry for the sob story..just feeling so down and confused about all this..trying to watch every thing that goes in my mouth etc etc...its so brutal.

I wish I could just stick to one plan and stick it through and have it work.
Right now that plan is salofalk 8 a day and salofalk eneas every night till i am better. I really hope that happens.

do you gals eat red meat? i have heard to stay away....

See thats what I thought..I DID respond VERY fast to salofalk when I was first dx. Everything was great...then I got preggo and was told to only take 4 salofalk a day ..and after my pregnancy I took many antibiotics and advils..both BAD for UC and that is what I tihnk caused the big flare... I never did anything rectal ..never got the chance too cause I was pushed on prednisone and humira..and things were too far gone by the time I increased my salofalk again..
I hope it still works for me...

kweeks..why dont you try the enemas? how many salofalk a day?

I think I am going to ask my gi for the enemas. I did mention it to him last time i saw him (Feb 4) but he said it was for low down stuff and that he didnt want to change anything until he took a look via scope in May! He is a new gi for me but i still see my old one when i am in town there.
about the enemas: what do you do if hubby wants to get intimate? I am guessing you cant?

LEVI no problem at all!
I too avoid sugar just because I think its bad all together...
I limit red meat. I dont want my iron to go low cause i already have fatigue issues so I limit it to once a week or once every two weeks and I dont think thats a problem.
I also do not eat or try not to eat anything fried..I try to remove peels of fruits and most veggies if I can.
I dont drink milk..only almond milk or lactose free..I dont drink anyting but water, orange juice and some teas..no caffeine..I try to eat fish 2-4 times a week. Chicken is always good...rice is good..home made broths are great..pasta is good..im italian so i cant help that lol

I haven't had caffeine in six years due to Wolff Parkinson White, but I also wouldn't for UC either.

Krissy, have you tried blackstrap molasses? My parents have always eaten it and it is high in iron, so I tried it after I got UC and when I was bleeding alot. It tasted terrible at first even mixed with fruit, but I've actually grown fond of it and eat/drink it straight up now.

wow fruitgirl that seems like a fast taper..i went down 5mg every week after 40mg for 3 weeks..until i hit 20mg..stayed there for two weeks and then did 15 for 2 weeks, 10 for 2 weeks, 5 for 2 weeks and then even cut them in half and did 2.5...
I still flared a month later again..thats why they put me on humira..

Your body was prob just ready to come out of the flare and that helped it all along..hey..whatever works right..:)

fruitgirl, thanks for the advice re: pred.
i am just so tired of feeling this way!! my main issues are cramping before a BM and after and then if i dont eat something right cramping, and then maybe more cramping. my bm's arent perfect but are ok just somewhat loose and recently my rectal area feels swollen after a bm?

anyways, UC is the worst! i really want to enjoy everyhting about my son, but i am always worried about how i am feeling or if i am going to get cramps etc!