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Ulcerative Colitis
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Posted 3/27/2010 8:17 AM (GMT 0)
 hi im having a flare up at the mo, ive been having little flare ups on and of for the last year now,it drives me nuts,im now on prednisolone for 5 dat corse i know it will settle but for how long, ive change my diet to fish,chicken, gluten free bread,pasta,soya milk and butter,ive started the gym, yesterday i got some psyllium are these ok to take with all my med cause i have to to 6 of them a day i also take flax oil caps, im hoping to stop these flares, im getting married soon and would like to be free, im hoping the psyllium will thicken my stools, if anyone can help me along with this it would be great, on this forum and if they have the time by my email too, im at my wits end.thanks a million. ps if i keep having these flares in my rectum will my GI start talking surgey, this would destory me.. my spelling isnt great..lol.
Posted 3/27/2010 10:46 AM (GMT 0)
     Sounds like you may be a bit stressed with the wedding coming up and that is all the proctitis needs.  I know, I have the same thing....stress me just a tad and that proctitis becomes a demon.

     Try cutting out the soymilk.  I used to take soy (Silk) in my cereal every morning.  I think it began to have a negative effect on me, so I switched to lactaid.  If you are having loose bowels, cut out the fish oil.  Try flaxseed capsules.  I never tried the psyllium but my doctor prescribed Cholestyramine.  It is a packet that I mix with a glass of orange juice to bulk up the stool.  It is somewhat gritty, so mix it well.  It doesn't taste bad at all mixed with the oj.

     I've been in an almost constant flare since May of 08.  Right now on Colazal (been on it for years), 40 mgm of prednisone (dependent by now) and since Remicade failed after the 3rd infusion, I started Humira last Wednesday, seeing no improvement yet. 

     Just hanging in there and most likely am looking at surgery in the near future but dread it.

     Good luck to you.

Posted 3/27/2010 12:50 PM (GMT 0)
How much are you going right now? The fiber is a maybe. Some people do better with the fiber some people do worse with the fiber while flaring so, you will just have to try both ways and see. For me, I just started up the fiber again when I made the flip from D to constipation. But I use Benefiber because Psyllium makes me gassy! Have you been on the Aloe very long? I find it kind of irritating...

Oh, and here's is the Mayo Clinic Low Residue diet, in case you hadn't seen it: http://www.mayoclinic.com/health/low-residue-diet/MY00745
Posted 3/27/2010 3:11 PM (GMT 0)
thanks you guys for your reply, christine if u r the same as me why do u think u will need surgery,if your colitis is just in your rectum,can your GI not fine a away 2 setted it if not then i could b going down the same road o i dont want that i hope u get better soon. jennifer thanks for that mayoclinic site i will try it asap, i am just going 1 or 2 times a day but when i do its not nice but ive been like this for a year now and its crap.lol. this site is new to me and i hope i fine help on it thanks again and stay in touch.
Posted 3/28/2010 12:38 AM (GMT 0)
Fiber always seems to help me. Right now I am on a mostly raw vegan diet(some cheats), and I have gone 3 months with only minor blips. I think soluble fiber could help if you experiment with it. Fiber may cause an initial reaction so sometimes it takes time to regulate your bowels. Find out what works for you and good luck!
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