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UC Meds and liver mass?

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Posted 4/3/2010 7:32 PM (GMT 0)
Hi guys...I was wondering if any of you might know if any of the side effects of our meds is liver masses or cysts? I was having a CT scan for a kidney issue...kidney looks fine, but of course the CT scan found something else that is new. My doc has been looking at my kidney for a couple of years, so I know this is a new thing. They found a small mass in my liver...I just had an Ultrasound Friday and he told me to call him Thursday for results..which I will go a bit crazy till then. I did read that Alluprol(i think that's what it is) can cause liver cysts. I take 100mgs of Aza, Pred enemas everyday right now for a flare and 4800mgs of Asacol...Just thought I'd ask!

Thanks a bunch..

Posted 4/3/2010 7:43 PM (GMT 0)
     I guess anything is possible but I do know that the 6MP can cause liver/and or pancreatic damage.  While on it my GI doctor had me monitored very closely.  I was taken off the drug twice during the seven years I was on it.  The first time was in May of 08 when admitted to the hospital, I was on 50 mgm of 6MP and my pancreatic enzyme levels were off the wall...extremely high.  By the end of my ten day hospitalization the levels returned to normal.  The doctor put me back on the 6MP about a month later with close monitoring.  He increased the 6MP to 100 mgm last summer when I was flaring badly but this made me feel terrible.....flu like symptoms, lethargic, white count dropped to 1.6 and bilirubin (liver function) was double the normal limit.  He cut the 6MP out.  Remicade failed, now as a last ditch effort to save my colon, trying Humira.
Posted 4/3/2010 9:36 PM (GMT 0)

pupluv:

Please calm down.  I take Imuran or Azathioprine as well and have had a CT scan of my Liver too.  It's quite common to find cysts or abscesses on a CT scan of the liver.  Your liver function tests will be more revealing as far Imuran affecting it because it's very telling.

MyUC

Posted 4/4/2010 3:30 AM (GMT 0)
 Thank you for your response. My liver function tests were actually ok except the Aza is becoming a bit toxic for my liver. The mass is a new thing the Doc wants me to check out...I'm just kinda worried about it. Will try to calm down...
Posted 4/4/2010 6:19 AM (GMT 0)
geez Donna...just what you don't need!

I hope he sets you up for an MRCP (abdominal/liver MRI)...before you get a liver biopsy.

Has he done cancer marker tests, etc?

I don't know much about the liver cysts....but maybe you should consider to go off the Aza?

I'd be going crazy till then, doing all sorts of research arming myself with qustions to ask the doctor, etc. I know it would make the stress worse, but research helps somehow.

Make sure you get a copy of the results....

Let us know on Thursday.

quincy
Posted 4/4/2010 3:14 PM (GMT 0)

Hi Quincy...thank you for your concern. This was found quite by accident, so nothing has been done as far as looking into cancer(that just scares me to death). Actually, my urologist is the one that has been looking into my kidney. The radioligist recommended the Ultrasound first to see what we could see. I thought they sure took a lot of pics...hope its not more than one mass. The Doc said if we can't see anything we would do an MRI and send it to a specialist to follow. The last breast exam I had they said there was a spot they wanted to follow as well so to come back in 6 mos. Well, that was 6 mos ago, so time for another mammogram. I have really firbrocystic breasts, so hopefully they are not related. I'm trying not to freak out and see what's up Thurs. I'm struggling with a flare right now so Im not sure about getting off of Aza(its not really working anymore anyway) so thats a probability. I will definitely let you know.

Thanks again.

Posted 4/4/2010 8:06 PM (GMT 0)
At least things are being looked after rather than left till "later". Good about the MRI. Oh, when you have one, you can buy a copy of it on a cd. I have mine from my MRCP.... I think it was $20 or so.

q
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