Today Is One Of Those Days...

well, this morning I was scheduled to fly to Washington DC for a couple days for work, now I haven't been feeling all that great lately with my anemia and colitis but felt well enough to go. I got up this morning for my usual morning BM and noticed more blood than usual. BM's are still very "loose" as well. Over the last few days I've had increasing lower/middle abdominal "pressure" and some cramping which was worse than normal this morning. My stomach didn't feel great this morning and didn't have much of an appetite but had to eat something so i had a small bowl of cereal and took my 6MP, Colazal and a couple of Immodium for the trip. I then got really nauseas and took a little bit of pepto before I went out the door. By the time I got to the airport I felt like I was going to throw up, I had the lower abdominal cramping, I was extremely weak and started to sweat a bit and my co-worker looked at me and said stay in the van and go home. So here I am in bed and I just weighed myself and I'm 149lbs...just over a month ago I was 163. I just called my GI and left a message for the nurse. I get the feeling it is now time for Remicade. My quality of life has been horrible all year, granted, part of that had to do with two hemorrhoid surgeries and two salmonella infections (which recent tests were clear). Now I'm dealing with the anemia and it looks like my Colitis wants to be a ***** all of a sudden. Honestly I'm afraid to try the Remicade for the sole reason of the cancer risk but there really aren't any other treatment options left. I see many of you have great success from it and swear by it. I really just want my life back...I haven't been able to do crap for months now because my health has kept me prisioner to my own home and that is no way to live! I'm now patiently waiting to hear back from my doctor and his decision...

Thanks for reading my rant

My doctor actually called me personally (thats a first)...he's doing procedures at the hospital and can't see me today but wants me to start 40mg of prednisione. He said if I'm truly bad I can admit myself to the hospital but he won't be able to see me till tomorrow. If I can wait he wants to see me first thing in the morning in his office. I'll take the prednisone and hold off till tomorrow and see if he wants to admit me or not. As much as I hate the prednisone, I know it will work...thank god I've never had any side effects from it

sadly though it never puts me in remission...I've been fighting a flare for two years now. I'm not hoping to be admitted but I think I may have to. I know how much better you feel when those IV meds get into you. I am going to ask about a transfusion for my anemia if I do get admitted, this iron supplemtation is for the birds.

Sorry to hear about your frustrations. Trust me you're not alone. My flare has been annoying the hell out of me as parts of my life has just had to go on hold.

My motto is always one day at a time. Keep working to remission. You WILL get there.

     Don't be afraid to try Remicade.   It has helped many people with Crohn's and UC.  If the other meds are failing, give it a shot.  I was on 6MP for over seven years, it never really put me in a full remission.  Remicade failed after my third infusion, but that is me...we are all different.  I am not ready to throw in the towel yet.  Tomorrow I am injecting my second round of Humira and keeping my fingers crossed it will help.  I am doing somewhat better, but also on 30 mgm of prednisone and tapering by 5 mg per week.  I haven't been able to retain the cort enemas for quite sometime but not for a lack of trying.  Instead, I use the cort suppository on alternate nights with the Canasa suppository.  Also taking 9 Colazal capsules per day.

     Hope you feel better soon.

Gordon,
How long have you been on the 6MP?

now this just goes to show how effective prednisone can be even though it's such a horrible drug....my BM this morning was more formed than anything I have seen over the last month and I only took one 40mg dose so far