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Anyone here with UC ever get C diff?

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Posted 4/9/2010 2:23 AM (GMT 0)
Hi everyone,

Another newbie here asking a question....I was diagnosed with UC in August of 2008. I was treated with prednisone and mesalamine ememas. It worked like a charm and I was happy and symptom free until 11/09.  Thats when I started to to have a flare up again and being the hard headed person I am I just thought it would get better and didnt really tell my GI specialist. But of course it got worse and I had my second colonoscopy 2/10, which showed some progression of the disease and patchy lessions, started prednisone and Rowasa again. That worked fine until I got to about 10mg of the predisone, when the bleeding, constant urge and other symptoms returned. So, my GI doc started me back on the mesalamine enemas and gave me a script for 400mg Asacol 3X a day.  First couple of days not to bad, then starting this past Tuesday I have started having the worst symptoms yet! Totally watery diarrhea up to 20X a day, severe abdominal cramping/pain, and today a fever of 100.2.  My GI is testing me for C diff.....so I to make a long story short I just wanted to see if anyone else has had any experiences like mine??

Thanks in advance :)

Posted 4/9/2010 2:29 AM (GMT 0)
My GI just did blood work to test me for C-diff. Came back negative.
Posted 4/9/2010 3:13 PM (GMT 0)
You may not be tolerating the Asacol.

My daughter did not tolerate any of the 5ASA's as they all caused worse diarrhea, cramping and frequency!

If it is not C-diff than I would consider another ASA or skipping the mesalamines.
Posted 4/9/2010 5:01 PM (GMT 0)

IBDISTHEPITS said...
You may not be tolerating the Asacol.

My daughter did not tolerate any of the 5ASA's as they all caused worse diarrhea, cramping and frequency!

If it is not C-diff than I would consider another ASA or skipping the mesalamines.

This.

Asacol and Colazal had me bleeding like crazy until I stopped it, and within a day of stopping so did the bleeding, some reason Sulfasalzine at half dosage didn't cause the problems.
Posted 4/9/2010 5:33 PM (GMT 0)
This question has come up a few times recently so no you're not alone. I had C Diff for 6 months last year. It was worse than a flare for me because it was so hard to get rid of permanently. Having had both now, for me the difference was with C Diff there was no blood or mucous. And for me, a flare shows signs it's coming and comes slowly. C Diff just shows up suddenly.

Good luck!
Posted 4/9/2010 5:39 PM (GMT 0)
Yup I had c-diff too. Its terrible, did a course of flagyl, which didnt work, then another course of oral Vanco, of course now that I am flaring again my doc wants to send another sample. Having c-diff sucks!
Posted 4/14/2010 12:36 AM (GMT 0)
I have also had cdiff....a month ago and it is taking forever to get me back in control. They treated me for a colitis flare and didn't realize that it was actually cdiff. Then once they finally treated the cdifff the colitis had really kicked in. Slowly getting better on prednisone.
Posted 4/14/2010 12:40 AM (GMT 0)
had it a few times actually after antibiotic treatments...even after stopping antibiotics, you can still develop it weeks later. I was on Flagyl and Vanco this past week in the hospital as a precaution incase it was present and he did multiple stool tests for it as well...4 I think.
Posted 4/15/2010 7:02 PM (GMT 0)
yes, i had c-diff. my flare started in Oct 2009 and my doctor decided to do a colonoscopy in Jan 2010. after that the colitis was so bad that i was hopitalized. they tested me for c-diff in the hopsital and i had it! i honestly think that i got c-diff from the colonoscopy (it is highly contagious). i am still flaring, even though the c-diff is gone.
Posted 4/16/2010 1:30 AM (GMT 0)
Have had c-diff. But that was about 6 months before the onset of my first flare. I still believe 100% in my heart that that is what started my UC. Not saying it caused it... but it sure started my symptoms. I never had any symptoms before that.
Posted 4/16/2010 12:34 PM (GMT 0)
Does C-difficile always involve fever and abdominal pain and all that, or just watery D? I am in a mess after a short Zythromax dose for sinus infection, and I know C-difficile can hit after the antibiotics.
Posted 4/16/2010 3:08 PM (GMT 0)
When I had it, sometimes I had a fever/cramps and sometimes I didn't. But the culture always confirmed I had it. And I actually got C Diff for the first time about 3 months after taking the antibiotics which is why I didn't connect the dots at first. No blood/mucous and it coming on so suddenly where my only consistent differentiators.
Posted 4/22/2010 1:25 PM (GMT 0)
UncleBubba; could you shoot me an email when you have time? Thanks! smile
Posted 4/22/2010 4:37 PM (GMT 0)
I believe my flares are antibiotic-related. My GI doesn't seem to care why I get flares. He is only interested in prescribing medicine to get rid of the flares. He did not test me for C-diff.

I took pred once and couldn't get off it. That's not uncommon whether or not one has C-diff.

I did fecal transplantation and went into remission immediately. Fecal transplantation has a very high rate of success for treating C-diff.
Posted 4/22/2010 6:25 PM (GMT 0)
Serpentskurt, I totally agree with you that I got my C.Diff from the colonoscopy!! I was in a "normal" flare, went in for a scope and a week later was just about on my deathbed w/ C.Diff.

For me it was 10x worse than UC. The D increased, became what seemed like all blood, and very high fever and vomiting ensued. Nasty stuff!!

I've been healthy for a year now on 6MP - praise God!!
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