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symptoms in relation to where UC is and what does active mean?

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Ulcerative Colitis
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Posted 4/28/2010 2:03 PM (GMT 0)
I am wondering whether there are certain symtpoms in relation to where the inflammation is. If I list the usual sytmpoms I come up with:

1. frequency

2. urgency

3. consistancy- diareah or firm

4. constipation

5. abdominal pain

6. rectal pain

7. bleeding

8. shape of stool-- thin, ribbon-like, normal, thick

Although I am said to be in remission with no active uc I still have thin stools that are urgent sometimes. I am wondering if this is normal or if there is some part of the colon that is being stubborn and not healed.

Also, what does it mean when they said no active uc? does that mean there is no inflammation at all and things are normal? or does it mean that there is inflammation there that is not bleeding or ulcered? i do not get it when they say active or not active. Is this the same as flaring or not flaring?

Posted 4/28/2010 2:07 PM (GMT 0)
My husband and I were having this conversation last night. Apparently there is a disease activity index (like with CD) and a score under two means the diseases is inactive. This is according to my husband, though I haven't looked into this so I'm not sure if what I've just written is correct. However, it was my understanding that remission meant no symptoms and all bloodwork normal. So, maybe it's possible if you're disease score is under two, it is inactive but you are not in remission if you are still having the symptoms you describe. It is confusing!
Posted 4/28/2010 2:49 PM (GMT 0)
If they looked at you by scope and seen no signs of ulceration, it is said that your Uc is inactive however, if they take biopsies and that shows cellular damage/change then it can be that you are healing.

It sounds to me like your rectal area is the most inflammed at the moment.
Posted 4/28/2010 3:02 PM (GMT 0)
When he looked at me by scope he said that things looked clear ..he even used the word "pristine" LOL. Something just does not feel normal still like Total remission. He had given me score of two out of 10 and said he was being hardnosed by giving me that score. He said that my UC was not active and I was in remission. Why dont I physcially feel like that?
Posted 4/28/2010 3:14 PM (GMT 0)
Last April I was in remission proven via colonoscopy. I was still having random symptoms such as D, urgency, cramping and occasionally blood. I was asking my GI about that and he said I may have IBS and the blood can be coming from internal hemmies I have. That didn't make much sense to me so I decided to experiment. I have a history of having bad reactions to 5-ASA's mainly mesalamines. I am on Colazal right now and I thought that maybe if I was having bad reactions to Asacol that maybe Colazal is not the best thing for me. So I reduced my dosage from 9 a day to 6 and things improved drastically. I was no longer having D or cramping. Have you ever asked your doc if you could reduce your med count?
Posted 4/28/2010 4:35 PM (GMT 0)
He gave me a taper schedule. Said to stay on 8 salofalk a day and enemas nightly for another month, then a month of every other night, and go from there..
No mention of lowering the oral dosage at all. I dont think lowering it would work for me as 12 a day is what got me into my remission during my first flare was i was diagnosed. I dont seem to have any sensitivy (fingers crossed) to 5asa right now.
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