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Ulcerative Colitis
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Posted 5/2/2010 1:45 PM (GMT 0)
Hi i,m female and 37 ,i have had colitis a while now i think 2 years ans ive only ever had it under control once and that was in november 09 untill about 4 weeks ago and it flared up again :(,, and i am on pentasa tablets 2 twice a day and on salafalk enema once a day,, but in a morning i have noticed when i wipe my self there is what seems to be black liquidy bits there (sorry dont know how else to explain :( (),,, but its only when i do my foam the night previous? and past couple days noticed its a bit jellyish and got black in (sorry again )not loads but am just concerened,,i,m hoping its just the medication playing up :( i hope so,,, i was supposed to have a colonoscopy last week they gave me Klean prep for me to take to empty the bowels the day before , u had to drink 3 to 4 litres of it,, i only managed to drink one litre and i was been sik and ill could not do it,, so never had camera ,, my doc also said i should not have been given this klean prep as its a contraindication with colitis, i,m having the camera because when i first had the cam and they took biopsy they could not determine which colitis it was,, ulcerative or what ever, so they want to find out,, i cant get hold of my consultants till tue with been bank holiday to air my concerns over this worry i have with this black stuff,, i just dont want to think the worst,, i,m trying to be sooo positive,, but needed to talk to someone other than family thats why i joined this site,,, i dont want to worry my family all the time,, ive mentioned it to my husband and he is great with me but i dont like going on and on about it,,, i just had no one else to ask,, i know it sounds disgusting and stuff just i needed to talk about it or i will go insane x

also today was feeling ok and we had a kid free day,, so me and the hubby went to franky and bennys for a meal,, i ordered salmon fishcakes and baked potato,, sounded lovely,,, i only got to eat about 3 bits of fish cake and immediatly felt unwell and bit breathelss and not with it (maybe panick related ),, and needed to loo instantly,, i went and yes there was blood (sorry again) i just did not feel right,, my husband understands now, but i just wanted to get home, they did not charge me for my meal but we was going to pay , i felt awful,,, got in the car and i just cried n cried,, its like i cant go nowhere,, i,m getting where i dare not go for meals etc its getting me sooooo down i dont know what to do about it,,, we got home,, i needed to loo again, (slight blood) then got sat down and needed to go again , i just wondered does anyone else get this funny feeling just before they need the loo,, i cant explain it very well but its like a fuzzy feeling some times asif i am gonna pass out or something,, then i need the loo,,,please reply if u feel like this too?

Posted 5/2/2010 2:09 PM (GMT 0)
Hi jo

You don't need to apologize here (or at your doctors either) for describing blood, poo or any other symptoms that tell your story. Everyone here is very familiar with these things and you NEED to describe or how can you get help?

On this forum there is a "Control Panel" that you can click. It's up above and the second banner down. When you click that you can go to "Edit Profile" and there you can put some info about what RX meds, supplements you take and any other info you'd like to share so people who know these things can respond to without you having to type it in every single time.

Your breathlessness COULD be anxiety or it could be something else. Could be what you ate (old fish?) or dehydration (loss of fluids through diarrhea/blood), reaction to meds, low blood pressure. Could be many things. You will have to be your own best detective. Doctors have too many patients to do this job and frankly it's hard to figure UC out. Even here in this forum people have different reactions to medications, food, etc.

So WELCOME. Spend some time doing a lot of reading here in past posts. Lots of valuable information. But remember you know yourself better than anyone else and everyone seems to be very different in their therapies.

Here is the place you can talk plainly about things. Your husband can give you support but people here know exactly what it's like.
Posted 5/2/2010 3:09 PM (GMT 0)
Jo

I am relativity new to this forum too. One thing I learned quickly is that embarrassing events that made me feel like I lost my dignity are sometimes common occurrences for the members of this group.

I have seen some strange looking poo since I developed UC. However many times my poo changes the next day to another new and exciting surprise. Many days I will have near black stool to be followed by light brown, sometimes in the same day. I know the feeling you feel inside is, Oh God… what now. I find that these feelings of anxiety only aggravate my UC. I think that when my UC acts up, my intake does not digest properly leading to unusual waste. So I now accept this as normal for my condition relieving me of anxiety and I focus on relieving the flare up. You may be having the same type of experience; however, if the dark stool persist you should follow up with your doctor.

I have experienced most of the same conditions that you described, although I have never felt like I was going to pass out before poo. I would describe my feeling as queasiness in the stomach before going.

This forum is a great place to be for UC sufferers. You will get a lot of good information, concerned responses and compassion and understanding. I thought by sharing my experiences, which in some cases are similar to yours, you may feel better mentally. I to have a hard time sharing my experiences with my wife and family although they try to be understanding they have not experienced what I am going through. Here I can be open because everyone understands since they have had same problems or even worse.
Posted 5/2/2010 3:23 PM (GMT 0)
Jo1972Uk and NABO, welcome to Healingwell! Glad you have both joined us.

Jo, you've gotten some great advice from the above posters, and I want to let you know that they are correct, never feel uncomfortable posting what's going on with your body on here; we all understand and most have been in your shoes. Since you can't get into until Tuesday, do use the emergency room if you are not feeling well or faint. Also, it's important to get in for that colonoscopy so they can see what's going on. As Imagardener2 mentioned, if you mention in your signature line what meds you take, it would be very helpful for us. Take care, and keep us updated on how you are doing.

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