Your opinions please..:)

Ok I posted on sunday about sickness on Remicade after my first dose 7 days ago. Although I haven't continued to throw up I have been deathly pale (more pale than I usually am anyway), and absolutely exhausted with little appetite. I experience these things most of the time anyway but it has been severe since my infusion. I spoke to one of the IBD nurses at the hospital and she said to come back in on Friday to chat things through and to discuss whether to carry on with the 2nd infusion or not. How likely is it that they take you off Remicade altogether? I'm concerned because my other option was to do a hospital study (involving spinal nerve endings which I am not happy about taking part it), or surgery, although I'm not sure they'd offer me this option at this point in time.

The frustrating thing is that it seems the Remicade is working for me, I've had no blood and barely any mucous since I started it, but I simply cannot handle what it seems to be doing to my body, I'm struggling to get through the day let alone being at work.

I just wondered if anyone had a similar experience, and what your opinions are on stopping it or not?

i have not had that experience with my remicade infusions, it has worked great......i would maybe try one more infusion, and if it happens again, then i would stop.

i know that flu symptoms are a side effect of Remicade, although I have never had that side effect from Remicade. if the Remicade is working for you, I would continue the infusions but wait for the next infusion until you feel better. i would also stay on the azathioprine for now, as i think it prevents your body from building an immunity to the Remicade.