I wailed and "war danced" for weeks in this forum before daring to go on my granddaughter's 5 day wedding cruise. I was so scared and SO prepared with: many diapers (button on kind is best!), plastic pants, many plastic bags for disposal, moist wipes and absolutely everything else that I thought might make it work. Up-graded to balcony so I could let fresh air into the cabin to spare my poor daughter who was sharing space with me. And guess what??????? I did not have an accident the whole time!!! This after having 3 to 5 dirty pants every morning for the past 6 months. I just had more warning time and was always able to make it to the john in time. All I can say is, "Allah was merciful!"
I had a wonderful time, the bride was darling and I was surrounded with love and joy for a week. Whoopee!!!!!
Now that I am back home, I have regressed a bit, but still not as bad as before I went. A really weird thing is that I am having distressing dreams. All different, but in each I am in physical trouble and no one will help me. The last one, I was begging someone to call 911, cuz I couldn't stand or walk and I knew I was in big trouble, but no one would. I finally started crying so loud that my husband came and woke me up. I guess I was under more stress on the cruise than it felt like then and this is my mind's way of working it out. But the cruise was great. The food was wasted, especially the lovely fruits cuz I'm not very hungry and am eating small, bland, starchy meals. The UPside of six months of diahrrea is that I've lost 25 pounds. My jeans were plenty big enough to accommodate a diaper. There is always an upside
Just wanted to update you after you all were so kind and encouraging before hand.
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Diagnosed 1993, in remission till GI said I no longer needed to take maintenance dose of 4 Asacol per day. Flared within a few months after that and have been a mess ever since till a week a go. I call it Megan's Miracle Marriage Cruise Cure. I have just started tapering on Pred and am now on 35 mg a day. also 10 Asacol. Supposed to be taking Asacol enemy and prednisone enema at night (they just made me more juicy and I am plenty juicy on my own - so I quit.) Will see GI this week.