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Ulcerative Colitis
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Posted 6/3/2010 11:32 PM (GMT 0)
Hi everyone,

just figured I'd check-in, in case someone thought I magically came up with a cure and then took off smilewinkgrin . Unfortunately, I'm still trying to figure this thing out; the only progress I've made is that I am finally able to wake up early enough for work and actually have some energy...sigh, but guess what...now I'm unemployed shakehead

On another note...

You know what's funny, no matter how hard I try...people just don't seem to grasp how messed up this condition really is, they just brush it off like it's nothing or in my head. Still, it's good to know that I have a family right here who understands.

love to all of you and hang in there, it will get better!

ps.
One day I will share my findings with this board, which may or may not help some of us.

blessings,

NBT
Posted 6/4/2010 12:33 PM (GMT 0)
Oh man that stinks about you losing your job! And yes, we can all definately relate to you so don't be a stranger ok?
Posted 6/4/2010 1:37 PM (GMT 0)
Hey NBT - nice to hear from you! Gosh, sorry about the job - that sure makes everything more difficult. Do you have any prospects?
If you do come up with that cure - share it with us before you disappear, OK? :-)
Posted 6/4/2010 2:16 PM (GMT 0)
NBT
Good luck with the job search.
Your sig. says your colon is 100% normal but it sounds like you are still struggling. Is it IBS symptoms now?
My understanding is that if a colonoscopy shows nothing and there are bad symptoms anyway the medical people name it IBS.

I am lucky that the small number of people around me took my UC seriously but I still needed to remind them about it sometimes because I looked and acted normal and was good at hiding the bad parts. That's just an animal thing I think, hide your disability.
NO ONE except someone who has this disease has any idea what hell it can be. The best doctor would be one who had it and found a cure. I never found one that empathetic.

Best wishes.
Posted 6/4/2010 4:29 PM (GMT 0)
Thanks to all of you for your kind words.

Recently, I made two silly mistakes (Thai Food and KFC) in the space of a month that caused constant diarrhea for days; you'd think that by now I've learned my lesson right? I've had a hunch for sometime now that Colitis maybe hereditary and that what we experience are the symptoms of another pre-existing condition.

After I made this thread yesterday, I stumbled across something that tells me that I may be onto something significant that supports my theory; but unless I have at least 4 weeks of symptom free days, I won't report on it...one symptom free day (no diarrhea, in fact no bowel movements for the day so far, no aches and pains, no fatigue, etc.) isn't enough.

I will touch bases in about a month, but this is the first time in two years of experiments that I've experienced results like this so I am very excited.

NBT
Posted 6/4/2010 8:38 PM (GMT 0)
Haha, I had some Popeye's last week and was in pain the next day, though I don't think it's my colitis. I think fried food just hates me.

Too bad on your job, that sucks.

And I hate it when people don't take this illness seriously. Luckily my boyfriend is understanding, but most of my friends and family don't get it no matter how many times I explain. Next time my grandmother asks me if I can just take pepto or my friend tells me raw milk will solve all my problems, I'm going to throw them out a window or something. I told one of my coworkers about a month ago and she looked at me like I had two heads, she didn't even realize how sick I was a few months ago.
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