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Ulcerative Colitis
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Posted 6/9/2010 4:49 PM (GMT 0)
Okay so I'm like stuck in Germany. I didn't seem to be getting worse flare-wise. Yesterday I went poop once or twice, blood, more mucous first, then some lil broken poo. Then we went on a super long walk and I was fine.
Today I went three times, lots of mucous, I did see blood but I'm not sure how much because there's only a lil water in the potties here and everything goes down where you can't see it. Also there's a cleaner thing so the water's always blue. Anyways I would get bad cramps, a girl tried to talk to me and I was afraid I looked unsociable because my voice was shaking from the pain all of a sudden and all I said in response was, "How do I get to the bathroom?" and then after I went I sat alone in the classroom til everyone came back. It didn't help they took like three half hour breaks which just made me mad because it prolonged my time away from the apartment.
Thank God we didn't go to pizza afterwards.
Anyways, my Bentyl is only 10mg. I see some people are on 20mg. Can I take two? Or how close together can I take Bentyl and how often?
Also, I was wondering if I should tell my mom and see if she can do something... I don't know what... getting me a script somehow and mailing it to me? Who knows....
Immodium? But I don't want the time bomb feeling...
Anyways... thanks.
I hope tomorrow's better, because we're going to be in Stuttgart longer X(
Posted 6/9/2010 6:05 PM (GMT 0)
DOSING: The recommended starting oral dose of dicyclomine (Bentyl) is 20 mg given 4 times daily. The dose can be increased to 40 mg 4 times daily. .

I'm not sure if your anywhere near a vitamin store but if you can get 400iu vitamin e capsules and an enema bottle, empty the oil from 8 or so capsules into a enema bottle and mix if with some good quality warm water and insert it rectally in the evening before bed and try to retain for the night if possible.  You should see a decrease in the blood by the next morning. Continue every night until symptom decrease.

The rowasa you take is that by mouth or is it a rectal med?  Can you increase that dosage?  If it is a rectal med you can add the vitamin e right into the medicine bottle.

I always use LOMOTIL especially when I have to go somewhere.  It helps for urgency, diahrea and it calms the stomach.  You need a perscription for it. 

You should elimate any foods that might be irritating.  I find salads, flour products, nuts and caffiene the worst during a flare.

Posted 6/9/2010 6:15 PM (GMT 0)
Oh I thought I changed my sig... I don't have any Rowasa.
Thanks for the bentyl tip.
I'll ask my host about vitamin stores. All I have with me is Boswellia, and vitamins c and d.
Posted 6/10/2010 6:36 PM (GMT 0)
I asked my mom to get me an appointment for a few days after I get home (so like, 29th), and we can't get one til August. Ridiculous.
Posted 6/10/2010 7:38 PM (GMT 0)
I wouldn't increase it to 40mg unless I was in absolute utter distress...and I've been using it for 21 years.

You're flaring...you need to get a 5ASA rectal retention enema asap (whatever is there).

Imodium won't help the flare....it'll just help you not go to the bathroom as often.

You're on the Aza still?

Hope you can get this worked out...

quincy
Posted 6/10/2010 7:43 PM (GMT 0)
Mostly like, I wondered how close together it can be taken. Like if my 10mg wears off in an hour, can I take another?

Yeah I know. Maybe I'll look around on the insurance site and see what it has to say.

I know it won't help but if it could get me through the day maybe? Can you take half of one?

I'm still on the aza and I hope I can keep it that way.

Thanks. Today was a little better. I've gone twice. I ate a lot more for dinner yesterday and again today (less while I'm out) so maybe that slowed me down. I'm also making a calendar to show my doctor. It'll actually be a new doctor. Why's everything happen at once? lol
Posted 6/10/2010 7:58 PM (GMT 0)
You can take 20mg....I doubled my dosages lots of times for years and finally asked the doc for just a 20mg dosage prescription.

Half a imodium should help...just don't overdo.

If you can get ANY rectal hydrocortisone meds over the counter there? At least that will help somewhat....

Everything happens at once....that's life it seems...worse with autoimmune disease. It's awesome you don't have a cold yet!
I'd be in a flare for sure long before going because of the planning, etc. I'd also know I'd be on the nightly enemas..

You need to deal with the inflammation so that you hopefully won't get worse. Maybe adding some probiotics? Fibre supplements?

I don't know if you can up the Imuran? Can you call the doc that prescribed it for you?

Oh, how long will you be in Germany? Hope you feel better soon....

quincy
Posted 6/10/2010 8:34 PM (GMT 0)
Over the counter rectal meds? Like Prep H or something?
Maybe soon I can go to a pharmacy or something and take a look around.

I don't know, the doctor who prescribed it is no longer with U of M. And my current doctor is a you-know-what. And I'm not sure about doing something like that away from home with the blood tests and everything.
I kinda wish I had Asacol with me, few of those would prolly set me straight.

I'm coming home on the 27th. I can't wait. It's nice here but I miss my boyfriend and my cat (who is on anti-depressants, lol..)
Posted 6/10/2010 8:38 PM (GMT 0)
your cat is on antidepressants? or your boyfriend?

The 27th isn't too far away, but with the discomfort and flight home will feel like forever.

If you can get just hydrocortisone rectal supps instead of prep H or anucort...they would be better. Best ask a pharmacist there...maybe a walk-in clinic could give a script...do you have extended health insurance?

Keep us updated how you're doing...hope the bentyl helps with the cramping.

q
Posted 6/10/2010 8:42 PM (GMT 0)
My cat, haha

What brand do they go by in the US?

I will. I hope I can make it okay. I thought I would have problems on the way here but I managed to make it all the way to where I'm staying. Hopefully I can get the same luck coming back. And also this weekend. We're sposed to walk up a mountain on Saturday and go to Stuttgart to the ballet and some art museums Sunday.
Posted 6/10/2010 9:06 PM (GMT 0)
You're a bearcat for punishment..lol. remember to take a roll of toilet paper and wipes just in case.

I don't know what brand names would be....countries are different with what's available. I don't even know what's available in Canada...

I do use proctocedyl suppositories, but by prescription. Maybe there's something like that available? You'll have to discuss it with a pharmacist as to what could help from otc.

q
Posted 6/10/2010 9:25 PM (GMT 0)
lol well, I don't want UC to stop me from seeing Germany. I need to do SOMETHING while I'm here! I'll wear a pad too.

Oh lol

I wonder if my mom could find something at home and express it to me
Posted 6/11/2010 7:12 AM (GMT 0)
hope she's able to do so.
q
Posted 6/12/2010 3:11 PM (GMT 0)
Update!
So far, so good. I've been eating bread, cheese, meat and fruit for dinner, and less food during the day. This seems to be helping. Also, I don't know if my Vitamin C should be chewed or not, but now I'm chewing it (it's not my usual ones) and maybe this is helping?

Also, I made it up the mountain, drank a coke and had a popsicle and a pretzel with butter, and made it back down! I can show you pics if you'd like. Tell me.

Tomorrow I go to Stuttgart, and I hope my stomach keeps behaving!
Posted 6/12/2010 3:39 PM (GMT 0)
YAY! Glad to hear you're doing OK! Good for you, figuring out what helps.
Keep us posted....
Posted 6/14/2010 6:28 PM (GMT 0)
I also made it through Stuttgart and the ballet! I even had a cup of coffee beforehand =) Which I admit was dumb but I'm not gonna spend three weeks in Germany without trying the coffee.
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