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Ulcerative Colitis
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Posted 6/30/2010 2:52 PM (GMT 0)
Just over a week ago things started to get better but now they have gotten REALLY better..nothing has changed in my routine other than no stress going on at the moment...may and june were quite stressful months for the most parts but then again everyone says stress doesnt cause flares..i beg to differ..

I am back down to about 1-3 bms a day..2 seems to be the constant..no blood..no urgency..pretty normalish stools for the most part..

Taking 12 Salofalk  a day..going on four months of nightly enemas...daily suppositories in the morning..vsl one packet a day plus my other supplements.

My question is whethere I can now remove the suppositories..or maybe do them every other day for a bit before stopping them..a few weeks back when I saw my GI he said my rectum looked fine and it was  a waste to be doing them..but I continued...

also..I have about two more packets of vsl..I was going to switch to ultimate floral critical care when they are done...would this be a good time? I was thinking to take a two pills a day? is this ok and if so can I Take them together?

Posted 6/30/2010 6:28 PM (GMT 0)
Hi Krissy....not everyone says stress doesn't cause flares. There are different kinds of stress and we sometimes don't know what our butt/gut is actually doing when specific kinds of ongoing stress/distress happen. Plus, you weren't in remission anyway, you were just off the Humira/had surgery/death in the family...blah, blah, blah.

Yes, you should try to taper the Canasa....I don't think you need them either at this point, so tapering is a good idea. (based on what I would do)

Continue the enemas for a few more weeks.

You can take two ultimate Flora CC....I do on occasion in conjunction with the Fortify...they seem to work well together.

I'm sooo happy to hear you're doing better.

Have you added any fibre supplements as of yet?
q
Posted 6/30/2010 6:58 PM (GMT 0)
That is good to here. Yes stress causes UC and lots of other health problems. I know it was a reason behind mine flaring up originally.
Posted 6/30/2010 7:27 PM (GMT 0)
So Im gonna do every other days supps then..and I will do the enemas nightly for another month 3 or 4 weeks..hopefully all is settled by then as I would REALLY like to drop those to every other night soon..I feel like I been on them forever!! lol
should I start with one pill at beditme and then if that doesnt help maybe do two ..or go straight to two?

I have not added the fibre yet.
Posted 6/30/2010 7:47 PM (GMT 0)
Keep in mind, IBD has a mind of it's own, we *think* we are in total control of our disease but our disease always gets the last laugh.
Posted 7/1/2010 7:46 AM (GMT 0)
I would take two for maybe a week since you'll be dropping the VSL.You might want to add another one to the UFCC. I couldn't find fortify today and ended up with one by New Roots. I opened it tonight and it's a powder...sheesh. Can't see on the label that it's powder and didn't shake the bottle to see if it was.. oh well, I'll mix it with water I guess and take the UFCC at the same time. This is what I got....


http://www.newrootsherbal.com/product/view/id/56



q
Posted 7/1/2010 7:50 AM (GMT 0)
OK, tried mixing it in water...I think I'm going to put the stuff in capsules..sigh.
q
Posted 7/2/2010 1:08 PM (GMT 0)
Can I take the two together at the same time before bed?
Posted 7/2/2010 7:39 PM (GMT 0)
...also..Still on a lot of mesalamine at this point..12 salofalk per day...4g enema every night and 1g suppositories every other day..still thinking this may be a lot of 5asa to be on while tihngs are going so well...that would be about 11g a day! WHOOOOOA...I know its not all getting aborbed but even half of that is alot I would think..
I need a good schedule for tapering..I am hoping to get back to 8 salofalk per day and enemas twice a week at some point..may be wishful thinking...
Posted 7/2/2010 8:20 PM (GMT 0)
I don't think you will have a problem to lower the Salofalk oral.....the crisis has eased and you're obviously healing emotionally.

Regarding the supps....taper them fairly quickly.

Then if all is good....taper the enemas to every second night.

Leave the oral and taper that maybe once you're at every 3rd night enemas. Do the oral one pill a week or every 2 weeks.



Regarding the probiotics...I take all of them, whatever it is I'm taking at the moment..lol...at bedtime, about 2 hours after my meds.

q
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