results of 2nd colonoscopy this year

ash'smom

Regular Member

Joined : May 2010

Posts : 55

Posted 7/7/2010 4:08 PM (GMT 0)

For a quick update on my situation: The first dr. was just a general surgeon who I was referred to and diagnosis was "non-specific colitis". He treated with Asacol and prednisone and told me to wean off Asacol and stop pred. cold turkey. Also he told me to do this while I was still having blood and said that I would always have a little. So , unhappy with his willingness to let me bleed for life, I found GI and now have a specfic diagnosis.

Moderate to severe ulcerative proctitis. Got pictures and all. And when the first test was done, things were MUCH worse then and he couldn't say for sure? Well, my suspicions were true, he didn't know much about what he was looking at and had no business trying to treat me. He should've been responsible and referred me to a specialist in the first place. I didn't even know what a GI was until after he diagnosed colitis and I researched it and found out it is normally taken care of by a GI. So for those who say it is my responsibility to say if I didn't want to go to him in the first place and should've asked for a GI to begin with if I had a problem with it, I didn't know any better and trusted the other Drs. Well, I am happy to know for sure what it is. Happy to have a Dr. who knows what he is doing. And am still not sure if or what kind of action to take with the first guy. Any suggestions?

Ugh Just Ugh

Veteran Member

Joined : Jan 2010

Posts : 1004

Posted 7/7/2010 5:32 PM (GMT 0)

If I were you I would write a letter to the person who referred you to him, write him a letter letting him know how you feel and then refuse to pay for his services. Then, move on with your life.

Everyone has had less than satisfactory medical care at some point in their lives. This disease is frustrating and the treatment options aren't always going to be clear cut or effective. Are you going to ask for a refund every time you try a drug that doesn't work for you? The next time you flare but you're on maintenance meds are you going to sue? I have spent THOUSANDS of dollars this year on tests and more tests because there IS not clear cut answer about how to control this disease. I'm soon to be starting Remicade which will cost me $1600 out of pocket for my first three infusions. What if it doesn't work? Should I sue? No... The point I'm trying to make here is that while I understand your frustration, I think you need to try and wrap your head around the fact that with this disease you might be in for a lifetime of frustration with doctors and ineffective medicines and tests and procedures. And NO you are owed something everytime a treatment doesn't work. It's just what this disease is. Yes, that doctor should have referred you to a GI. But, he didn't injure you. Just move on...

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