Fecal Transplant - I took the plunge! PART IV

tankor are you going to do the FT then?

Hi again,

Where are the specific instructions, do you have them and can you post them?

My mom is very hesitant and she the healthiest person I know. Like I said yesterday, I called the Duluth Clinic of Digestive Health and they are currently only doing recurrent c-diff patients and the lady wrote back " hope you find relief using your UC medication" *** that doesn't help and that wasn't encouraging!

I have been on major amounts of antibiotics up until a month and half ago for Lyme's disease. I have CP bacteria which is a bacteria from phenoma that still lingering. I can't do anymore of the antibiotics they were giving me panic attacks. I haven't been back to my lyme doctor. Now my GI says she hears this Lyme doctor tells everyone they have lymes, if they have illness they can't cure. That was NOT comforting in the least. ALthough I'm doing better now on my UC meds then I ever have.

Keep us informed. I would ask my donor to go into a clinic and say they have stomach problems and see if they can test their stool for bacteria or yeast problems, I think that's one way of getting checked. I've done it myself.

My mom was willing now she wants me to jump threw so many hoops I can't count. I can't find a doctor in the US that will do it. I've been calling.

I have someone else in mind, but they drink Monster energy drinks, will this be ok I wonder?

Also, my girlfriend has 8 months old twins should I ask her? What's best I wonder?

 

mido, I have a few ?'s if thats alright.

1. Did you get a stool analysis to analyze your intestinal flora after the procedure to see what changes it may have made?
2. How irritated was your colon before the procedure. Australia told me if someone is having a lot of inflammation that can greatly effect results.

It doesn't sound like the procedure has changed that much. I'm surprised you have trouble reaching them, not really my experience. But always
discouraging when you hear that.

I don't know whether you should try again. I myself would not use someone over 60. I think you should maybe try a child at least 2 years of age. Thats
about the age when a child's flora resembles that of an adult. I think you want to use someone who is very healthy. A child is a much better chance of that.
Someone as old as 60 can't really be in perfect health I think. But someone on the news with C-diff used their husband as a donor, they were in there 50's 60's and
the procedure cured her.

I want to point out to anyone reading my posts that I've tried to gather as much information as possible. But by no means do I have the answers or can I
guarantee my opinions.

I just called them by phone, and got threw no problem. I talked with there clinical head coordinator not Dr Borody. Had
to pay for this and schedule this.

Yes I did show them my lab results. I had Kleb & also moderate candida (yeast). They pretty much could care less about the
candida. Apparently the procedure cures candida, as proper bowel flora creates an environment thats impossible for candida to
remain in its yeast form. As far as the kleb, they replied with what I already told you.

Your right about the colonoscopy sample testing. It is far more accurate than shipping a sample out to a lab. As soon as it "exits"
you body, the bacteria starts to decay. So those tests are never 100% accurate. Even though you test 0 it doesn't necessarily mean
you don't have any of that bacteria.

Taking probiotics should always benefit you. Even though they don't adhere to the intestinal walls, they do perform functions normally
carried out by the same bacteria in your system. They also attack bad bacteria and help existing good bacteria proliferate. The problem
is that as you say, you must take them forever. I'm almost temped to ignore all the FT protocol. Just take a healthy child, and try the
procedure as is, just to see how effective it works.

You were right about that antibiotic and its effects on hearing. I think I will not be taking it. I'm probably gonna spend a few days &
really plan out which antibiotics I decide to use if any. I hate taking them again, as they put me in this mess in the first place. But
the same reason there bad to take, is the same reason they can be effective. There extremely powerful. More powerful than anything
natural you could take. It seems like these days I look for answers, find them only to have more ?'s pop up.

If I were you sunspot, I would have done this procedure already if I had a healthy 5 year old son. I'd just try it once, with no medication,
perhaps after a colonic would be good just to clean the bowel out. I mean seriously animals do this all the time. I saw my dog eat crap,
and he didn't fall over & die. The risk, and the hesitation of hospitals to perform this procedure is the risk of transferring unwanted parasites
and pathogens to the host. Also I think money is a big issue as you can't make money off someone who is cured. I have heard of people
cured in 24 hrs just from 1 fecal transplant from there child. Stools really are just 70% probiotic, only far more diverse and with far
greater numbers of bacteria. Take them by enema to avoid stomach acid killing the bacteria, and you have the worlds greatest probiotic.
Just out of curiosity where do you live?

I live in NYC.

I would do the FT route but only after I am fully convinced i can do it properly. Worse than anything I have found from some past experiences is doing it half well, only to find that I seriously screw things up more. I fear antibiotics right now because of it. I have taken so many in the past and I am very concerned that doing it even if followed by FT will make me worse.

For now I may continue with my probios a bit longer, see how things go, and then do another CDSA since as I noted my last test was two years ago and I am doing far far better than I was doing then. So partly I just want to see if I am already in a better state than before, and take it from there.

There is no question in my mind that FT could really be a great option, and I am seriously interested, but I just have to prepare myself! There is a part of me that would love to take the family for a "vacation" to Australia, and just have this all done there. But it feels like it is a multi-week process and not sure i can take that type of time off from work, unless I really claim medical somehow.

But nobody in this country really has much sympathy for digestive related problems I find. Somehow they are not taken as seriously as the big C or other body issues, even though digestive issues are such a huge problem.

I read where a lady used her sister and flew with the poop to the doctor in another state. So I'm guessing the bacteria is still good should my donor "go" in the morning and refrigerates the stool and I administer at night, should be fine with effectiveness do you know?

 

I know how you feel, I cry to myself and say, is this scrapping the bottom of tha barrel or what? But then I read the case studies from CDD of Austrailia and I'm encouraged. I'm going to my ex who is a great doner, healthy, regular, never sick but he won't be available for a couple of weeks. I plan on going over there in the morning and hanging out after for hours, he's a morning pooper. I've been on a massive! a massive amount of antibiotics for the past six months or more for lyme's disease, I can't take anymore! Did you read the post on mixing metamucil, applesauce, VSL#3 probiotic and taking it? I'm going to give that a whirl too. I'm not scared to try anything or buying anything within reason. I googled "recent up to date information on Fecal Transplantation" and got more information. I'm going to have to buy a little blender and saline solution. I'm going to use my Rowasa bottle to admister it. I really feel good about this. It's better than doing the whipworm or pigworm if you ask me. I can't have creepy crawling that I know about in me. Also, I read with the whipworm you feel them crawl over you alot when they are multiply. I saw a Youtube video on a couple who did who had chrons.

here's a publication the cdd released http://www.cdd.com.au/pdf/publications/paper12.pdf

Does anybody else wonder if people who are cured of say ibs-d would even bother to find there way on a forum.
I mean I suppose I would just because I've been lurking around them so much. But there may be alot of people
who find there way to the cdd who would never think to look online for health info. In fact, the notion of looking
online for information may scare some people. I think alot of people trust there doctors, and don't go farther than
that for health info.

If I had a child, I would have tried it already. The donor issue for me isn't so simple. I don't think I will be able to
just take as many attempts as I would like. I'm gonna do more research and just see what I come up with.
I'd prefer if you would be the guinea pig on this lol .. I think if you tried it tommorrow with no antibiotics you would
notice an immediate effect. The problem being would there be enough room for the good bacteria to find a home.
Or would the kleb and bad bacteria still overrun it. I would speculate that you see an immediate halt to your symtoms
but that you might relapse. But again I just really don't know

Tankor, I have read this article before, but it refers in the main section to IBS-C cases, not IBS-D, and in the table summarizing responsiveness, there is no clarification as to whether the 55 patients were IBS-D or IBS-C, and as to the breakdown of those who responded versus those who didn't. I was hoping in your discussion with the CDD they had affirmatively noted a clearing up of symptoms in IBS-D patients. Also, curious for those it worked for, what their symptoms were like. Again, IBS is such a catch all that it would be interesting to know the exact set of symptoms where FT truly made a difference.

I am not focused on the IBD references since I presume that is to inflamatory bowel disorders, not IBS-D.

You guys now anything about what the CDD wants for kind of patients?

I mean I dont want to go through another colonoscopy test if Im not the type of person how can get their treatment

I read somewhere that they only want persons who are in remission,
but when I talked to them they didnt gave me much information, just told me to fax my diagnosis and if they can help me they will call.

I figure if they only want patients who are in remission I could go to acupuncture a month or so to heal before colonoscopy.

I have a long email into a doc at Minneapolis MN University Clinic about doing the FT, I'm waiting to hear back and will post. I advise I'm willing to travel from Michgian to see him, but hopefully I can consult over the phone and fax results from my scope last month. If he says no, I will be doing it myself. I can't seem to find a doc who's willing to do it for UC here in the US.

I have not done an enema before. Funny thing is for years I have been a huge believer in antibiotics, and had to take them for a pretty serious condition 15 years ago including intravenous antibiotics, and I had absolutely no ill effects. In fact one of the things I was amused to notice when I got the IV antibiotics was that my stools completely cleared up. So I had always presumed ABs would be helpful. But then a doc a few years ago suggested I had lyme disease (no reason to have suspected it, not having a tick bite or anything, just randomly he tested my blood), and next thing you know he had me on several months of ABs. This time it was too much for my system and I slowly started to have more and more problems.

Looking back now, I kick myself for not immediately using probiotics, but I really didn't realize what was happening. I think I probably could have prevented what happened.

Anyway, as you were asking, I do not believe I have ever had any blood in my stools. Nor when they did the two colonoscopies on me (one in '06 and then one in '07) they found no signs of inflammation. That was when boom, the tag "IBS" was pronounced, and off I was sent. Initially with amitriptyine (sp?) which made me nuts so I immediately quit it, and then a laundry list of other things from cholestyramine to finally immodium. Immodium has been my lifesaver - given I have a stressful job with long hours, was only way I could make it thru. And leaving my work is not an option unfortunately. Which is also why whenever I think about the Australia option, I get concerned it would involve too much time away.