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Scd thread...PART II

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Ulcerative Colitis
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Posted 9/15/2010 12:53 PM (GMT 0)
yeah bumping yeah

How's everyone doing?!

This afternoon, Im ok. I had been finding things so hard lately. I even went to bed with a migrain and woke up with it still banging, but thats no SCD related, its just what it is. This afternoon Im feeling a little more upbeat.

I have to admit that over the last few weeks, Ive felt down. Its the pain. I know Ive talked about it. I kind of see no end in sight to be honest. Its hard to be in pain and keep upbeat about how I might feel in a years time. I dont even really like to look to how others feel, physically, how they cope and such, bc UC is so different for everyone. The pain can put me in a bad mood, get me down. Maybe its bc its only been a few months since I started the meds and diet and it just takes longer to 'fix' my guts, but really every day can be such a drudgery. Oh yeah, its not just the pain either, its the lethargy, tiredness, exhaustion. I still suffer with that too.

Im a little sorry I come here and vent like this, I honestly hate to sound down all the time. I really dont know what to do as a pick-me-up. Im a sahm... even tho all my kids are school age and now, for the first time this year, are all going to and coming home from school all by themselves. I decided that (even tho its hard, in my mind, as a mum) I need to take some time and do just about nothing. Just the basics. Work on resting and getting well. I wanted to start some coarses soon, but I am definately putting that on the back burner for now and concentrating on getting well. Its ...uuummm... mentally hard tho. I have nothing to do except go on the computer, clean the house and watch tv. Well, I make meals and do basic 'mum' stuff too, but its all the 'mundane' everyday stuff Ive done for 12 years now and Im quite bored with it!! If Im completely honest! Staring at these four walls, or however many walls I actually live in, I havent counted yet, that could keep me occupied for a few... minutes maybe.... its ...a little... depressing.

Im just gonna keep taking it one day at a time. I just needed a little vent.

Is there anyone in the UK here doing scd? If so, what probiotics would you suggest? Even if you arent in the UK, what probiotics do you use? I might could find the equivelant.

Cheers yeah
Posted 9/15/2010 2:23 PM (GMT 0)
It's normal to have those mood swings and feel like there's no end in sight. We've become such an immediate gratification society, we expect instant health turn arounds from magic pills. Chronic illness generally doesn't work that way. It takes most of us a long time for IBD to develop. Accordingly, it takes a long time to heal and the healing process is usually more of a spiral path of good days and not-so-good days, remission and relapse, before you learn how to truly manage the disease and maintain long-term remission. I was in a constant flare for over a year, so I understand how you feel. It's okay to have a "pity party," but then you gotta pick yourself up and find something positive to occupy your mind.

I spent alot of the time I was so sick and mostly house-bound researching IBD and trying to learn all I could. There's a lot of info out there you'll never run across if you're relying only on what your doctor tells/gives you. Read everything you can get your hands on - books related to UC and IBD and those that are just about the digestive system. Alot of us don't fully understand how a healthy digestive system is supposed to work or how things can go wrong. I can recommend several good books, if you're interested.

You should also look for new activities that can improve your physical and mental health. Gentle workouts, yoga, meditation or just getting outside and walking/getting fresh air can help. Find a new hobby you enjoy. It will help pass the time, give you something to look forward to and you'll feel like you're doing something good for yourself: drawing, knitting, sewing, gardening, cooking... whatever.
Posted 9/15/2010 4:09 PM (GMT 0)
Thank you princesa for taking the time to say all that. I think you are right. Ive spent SO long, 12 years doing what everyone else wants and needs, seeing to the needs of my family, sacrificing my own hobbies and such for everyone else in my family. I think its long overdue for me to think about what it is I do want to do with my spare time... Finding what I enjoy... that could be interesting! I have no idea what I enjoy anymore. Maybe, just maybe I can see this 'season' in my life as a blessing in disguise. I almost feel guilty for thinking about myself, I feel selfish! I almost cant justify finding things I enjoy!

Your single post was very helpful. I used to enjoy yoga. I might look into that again.
Posted 9/15/2010 4:40 PM (GMT 0)
SoIGot....
I agree with princessa. To do something for yourself would be good. To add, from my own experience..... gosh, 10 years ago I felt so much exactly as you described! I started forcing myself to take time to do "me" things.. voice lessons, horseback lessons, meditation.... and I became a calmer, better mother for it. Is there anything you've always wanted to do but couldn't? (For me it was the horseback lessons.) I find that something which "stretches" me out of my routine helps my perspective....
Keep us posted, ok?
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