Hello everyone! I'm new here... my 19 month old son just diagnoised with severe UC back in August. Had 2 hospitalizations lasted over 20 days since. He was on Prednisolone alone, but he had another flared up 2 weeks after the discharge from the hospital. He started on Remicade a couple weeks ago due the the severeity of his condition. It worked almost immediately within 24 hours, frequency from 9bm to 2, and the bleeding stopped. He just had his second infusion on Wednesday, a couple days earlier than scheduled because there are blood in his stool again. We were hoping the second infusion will stop the bleeding but it is not working as well this time around, the bleeding is getting worst and he just had a bloody stool at 3am this morning. I wonder if it is just taking longer the second time or it had stopped working for him. Has anyone on Remicade had this happen to them? I am so nervous and scared that even Remicade won't work for him. Anyone tried the SDC diet with success? I kept thinking that I am doing something wrong and making his symptoms worst by giving him the WRONG food. He is on Remicade, Prednisolone 7ml, iron, multivitimin with iron. He is mostly on neocate junior formula, rice and vegetable. He doesn't think baby food anymore, so we have been giving him a lot of rice, rice crispy cereals, potato, and some vegetable boiled in chicken broth (homemade). I really appreciate any advice you can give me! Thanks in advance!
Also thinking about second opinion... a lot of people told me about mayo, and Boston children's. I wonder if anyone here is a patient. I can't decide which hospital I should go. Thanks for any insight!