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how low to go

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Ulcerative Colitis
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Posted 10/27/2010 1:56 AM (GMT 0)
I just dropped to 6 asacols (from 7) a day, and enemas and canasas every third day (from every other day).

Is assume this is the rock bottom on the taper for my pancolitis.

I'm nervous because the last couple times I got this low things went sideways. First I was only on Asacol and maybe Canasas now and again, and I flared. The second time I was on enemas and dropped to every third day and I got rectal inflammation.

So I'm a bit nervous. I know what to do if things bounce back. Just a little nervous. I kind of wanted to stay just above the bottom taper level -- just for psychological comfort.
Posted 10/27/2010 3:10 AM (GMT 0)
Well, as you said, you know what to do. We all do I think! But, give it a chance. I think that's all you can do. And if things go sideways, you will deal with it when it happens. One of my favorite quotes is, "Worrying is as pointless as trying to go up a hill in a rocking chair. You can try all you want, but you're still going to be stuck in the same spot at the end". So, deep breaths and think positive! :)
Posted 10/27/2010 3:29 AM (GMT 0)
I think 6 a day is seen as a normal maintenence dose. I would be very happy if I could take Canasa and 6 Asacol, that is not too difficult to deal with. You should see my crazy medicine cabinet.
Posted 10/27/2010 3:39 AM (GMT 0)
I have a medicine basket, one's live and one's a graveyard of abandoned remedies
Posted 10/27/2010 5:13 AM (GMT 0)
I have a bag in the closet that I could probably sell for 1000s. ;)

emergency stash...

Posted 10/27/2010 5:24 AM (GMT 0)
I've got a lot of expensive mutaflor in the fridge that I abandoned because it made me pass too much gas and liquid.
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