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Posted 10/27/2010 10:29 PM (GMT 0)
Hello Everyone!

I wanted to see if anyone has been diagnosed with something called Dyshidrosis eczema or any other skin issue? I have had small fluid filled blisters popping up all over my hands, feet, scalp, and random other places. They start out as one blister and then several form around it and eventually they pop and peel and BOY DO THEY ITCH! I have diagnosed myself through pictures on google (I know, I know....!) but did speak with my dermatologist and she said it sounded like it too. It is 3 weeks before I can get in to see her. Has anyone else had this? From what I read, it can be related to infusions - I'm very afraid that my GI doc will not give me treatments anymore because of this. ( I did call my GI doc too)  Like our disease, the true cause is unknown but it has been "linked" in some people to infusions. Any feedback is greatly appreciated - if you have had it, how did you treat the symptoms, if you had it and were on Remicade, what did your doc say about continuing treatments?  I want to have SOME knowledge besides google prior to the visit. I'm freaking out about stopping my Remicade treatments. It seems to be the only thing that has worked for me and I'm adamant that I won't go back to steroids. Thanks so much in advance for any help you can provide!

 

Posted 10/28/2010 2:18 PM (GMT 0)
Yes. I had dyshidrotic eczema of the hands and a plaque-like lesion of the feet that is associated with Remicade. There are several studies regarding this rare side effect. It was particularly troubling for me because I am a physician and surgeon and am constantly using gloves and washing my hands throughout the day. Topical steroids will help and your physician can prescribe this for you. Studies show that this usually goes away after stopping the Remicade. You will likely be able to manage it with topical steroids if stopping Remicade is not an option. Your GI may also consider switching you to one of the other TNF-a inhibitors that is human derived (not mouse derived like Remicade). I switched to another TNF-a inhibitor and still had the same problems. My GI was never too worried about this and it was my suggestion to switch to another drug.
Posted 11/11/2010 1:48 AM (GMT 0)
Hi Napacabs,

I am just now getting this post, usually the site emails me when I have a response but this time it didn't. I'm sure it is something with my settings I need to update. Anyway, I have been diagnosed with Psoriasis, which I'm not sure is the same thing? I've had it in other areas like the scalp, back of legs, and genital area. My dermatologist thinks it's Psoriasis but when I looked at pictures, I thought it looked like dyshidrotic eczema. I have been prescribed topical steroids but like you, I deal with kids all day so I'm constantly washing my hands (no comparison to the amount of times you do). Did you stop the TNF-a inhibitor or are you still taking it? I'm really freaking out. I'll post my recent post on this thread.
Posted 11/11/2010 2:32 PM (GMT 0)
I have something similiar but I am not on Remicade. I get small blisters on my legs and when they pop, it itches. They don't come in clusters either. It comes and goes. I do have psoriasis which has been in check since starting on 6mp but I have it along my hairline, forehead, on the sides of my face by my ears and on my ears. But I am not sure if I have the same thing as you. I just wanted to comment that, if it is what you have, that it may be the Remicade (it does suppress the immune system yes?) and/or any other immune suppressor.
Posted 11/11/2010 4:57 PM (GMT 0)
This may be comparing apples to oranges, but I had quite a bad case of eczema around the time I was diagnosed with UC.  It responded really well over a short time to a steroid cream.  Perhaps they will allow you to treat the rash first before deciding to take you off remicade.
Posted 11/11/2010 10:24 PM (GMT 0)
There are several forms of psoriasis and a number of studies that show worsening of psorasis with use of Remicade (despite the fact that it is often used as treatment for psoriatic arthritis). I am no longer on Remicade and the symptoms have gradually improved. I tried Cimzia but this made it worse. I do not use any topical steroid treatments at this time but did find it helpful when it was at its worst. If you want some information on this or would like some nice bedtime reading that will put you to sleep in a heartbeat, go to pubmed.com and search Remicade, side effect, psoriasis. I've come across at least a dozen studies talking about this side effect. I struggled with the decision to stop Remicade as I do believe it was very helpful in getting me into remission but was willing to try to maintain remission with other forms of therapy (diet/probiotics). I have been off the tnf-alpha inhibitors for nearly a year and have enjoyed a very nice remission. My hands and feet are nearly 100%.
Posted 11/8/2019 10:31 PM (GMT 0)
I have had this type of dermatitis since I was 18 (I’m now 36), but it was never diagnosed til I over this past year have had such a bad flare of it on my right hand, now that’s cleared and it’s my left hand! I was so frustrated at the dermatologist, that I searched and diagnosed myself. It’s a very separate and distinctive type, which is frequently misdiagnosed! I believe now that it is totally related to the UC that I have always had, but didn’t know about til earlier this year when I had my first bad flare that led to its discovery. I refused the meds after just a couple times using The suppository as it made my symptoms so much worse. I started on a good quality Curcumin extract and changed a few other things. It cleared up very quickly and surprisingly (to me)!

But I have stopped most of those things I had been doing and have had a flare-up of my left hand... and I feel like there is something going on in my upper GIT! There is a definite connection!
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