Just thought I'd check in. I'm now off the Remicade after being on it for over five years. I first had a little reaction to it and was very sick to my stomach and dizzy while being infused. Of course they dosed me right away with Prednisone and Benedryl to stop the reaction. I continued the infusion at a slower pace with no problem. Next infusion about
five minutes in I started to get that quesy feeling and I was sicker than a dog. I eventually continued the infusion but the next morning I awoke to a puffy red face, and also a red rash on my chest and arms.
My doctor immediately told me no more Remicade, and switched me to 8 Asacol a day. At first I didn't take well to the Asacol and stopped it for about a week. Then I restarted the Asacol and I've felt really well ever since. I was so worried that I wouldn't feel well off the Remicade, but I often think I feel better being off of it. I suppose I can say that the Remicade did the trick in healing my colon, and let's hope it stays that way and I can continue the Asacol for a long time. Otherwise everything is great; got a small job promotion, and still very happily married! Every once in a while I pop in to see what all of you are up to and how things are going. Take care!