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Ulcerative Colitis
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Posted 11/17/2010 2:17 PM (GMT 0)
I noticed that sometimes at night i start to get a slightly crampy/gasy feeling in my stomach (rumble sounds). Well this morning i was greeted with a lovely experience, had a little leakage. I am guessing that while i was sleeping i went to pass gas and a little extra of that liquidy bloodish stuff came out. It wasn't full blood and there was NO stool in there at all. Just a few reddish light stains on the sheets. I am no med at the moment. Waiting to see new GI in DEC. Anyone else ever get this ?

I stopped Lialda 4x a day which made things worse.
I stopped canasa since it didn't do anything for me. I get the same symptoms i did while on the canasa.

I am not sure if it was something i ate that night or if things are getting worse.
Posted 11/17/2010 3:10 PM (GMT 0)
It sounds like you are in a flare. I experienced the same thing during the period of a severe flare. Not a pleasant thing. It sounds like you are intollerant to Mesalamine products. Some people do not do well with these meds and the medications themselves can worsen the flare or create symptoms identical (if not worse) to active UC. Hopefully you are meeting soon with your GI. It might be worth contacting him/her early inform them that you only worsened with the Lialda and Canasa. Letting the flare go too long untreated only extends the involvement of the UC and makes it harder to get into remission. It is key to stay on top of the inflammation. Your doctor might try one of the 5-ASA drugs, however, you might find you have a sensitivity to them as well. Track your symptoms carefully when you start a new med and see how you respond. Good luck
Posted 11/17/2010 3:36 PM (GMT 0)
You're defiitely flaring...maybe get back on the canasa to see if it'll help at this point. Otherwise, maybe call your GP and see if he/she can prescribe you a steroid rectal foam.

How long were you on the Lialda? The problem with starting at a high dosage of 5ASA is that the side effects can look like a flare is worsening. The doc should have started you low. I would suggest you try it at 2 daily and see if that changes your symptoms.

You can add probiotics and fibre supplements to see if that helps.

q
Posted 11/17/2010 3:52 PM (GMT 0)
Well my original GI had me on the lialda and canasa. I told him about the lialda and he advised me to stop taking it which i did. However he recommended i still stay on the canasa. I told him in my eyes its pointless because its not doing ANYTHING so why take meds if its not working. He paused for a bit. Thats when he recommended me to another GI. He told me that he is a GI surgeon and that maybe i see someone who specializes more in medicine. So thats why i am off everything right now and have an appt with the new GI on Dec 10th.
Posted 11/17/2010 8:35 PM (GMT 0)

where is your uc located?

what you are describing, the leakage, was one of my last symptoms to go away from my last flare.  I used to have it all day, though (had to wear a maxipad daily, fun times). 

I think what finally made it go away was an increase from 2 lialda to 3, daily rowasa, and a change in diet (no dairy, no coffee, no black tea)

are you allergic to mesalamine? I hope you find a med that works for you

Posted 11/17/2010 11:03 PM (GMT 0)
I have it in the rectum only.
Posted 11/17/2010 11:41 PM (GMT 0)
I tried several mesalmines including canasa and found them all to make me sicker.  So, my first GI doc put me on prednisone and 6MP. I never could get to a therapeutic dose of 6MP.  He then sent me to another GI doc (like yours did) as he felt he could not do anything more for me.  This specialist was 250 miles away so I went twice on the train.  Anyway, he tapered me off prednisone and stopped the 6MP and put me on steroid rectal meds ONLY!  I also have proctitis  (one scope showed little bit up the sigmoid).  He prescribed Cortifoam (I had tried enemas and could not administer them or keep them in long) and Anusol suppositories.  He prescribed each three times a day which I did until I started feeling better (less blood and D) and then tapered to twice a day, etc. etc. 

As in my signature I only use the rectal meds occasionally now when I feel slight symptoms of gas/D/mucous.  Have not seen blood for a year!

Good luck!  Just wanted to tell you want worked for me.

ElaineNY

Posted 11/17/2010 11:43 PM (GMT 0)
I can't wait till i no longer see blood. I been seeing it for almost a year now.
Posted 11/18/2010 6:42 AM (GMT 0)
I have had episodes that awoke me with urgency and it lasted all of august/september but I never failed to wake up. Not sure what is up with my sig but here is what I take, from my profile:

Sulfasalazine
Mebeverine
Librax
VSL#3
Fish Oil capsules
Psyllium Husk and Psyllium seed powder
Iron
Canned Spinach
Coumadin
Vicodin

Solid waste 0-1 times daily, 1-3 times daily if I consume lots of coffee etc.
Posted 11/18/2010 12:04 PM (GMT 0)
Brings back memories.

Yes. I wouldn't be able to fart when I was flaring, and when I did, liquid would come out.
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