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Tongue problems?? Hair Loss???

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Ulcerative Colitis
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Posted 12/6/2010 3:16 AM (GMT 0)
So I really hope someone can help me or give me some advise.

I'm 20 and been in and out of remission(currently flared)

For the past year I've been having what I called allergic reations to certain foods.

It started with lemons and fruits in general..

My tongue will literally break out and swell up and it is very painful. 

It's progresivly getting worse and i'm pretty sure it's not allergies.

It's pretty much everytime I eat now.

Lemons, fruit, ketchup, A1 sauce, any type of spices, and pretty much anything that is slightly acidic

Has anyone esle experienced this with UC or Asacol?

Also finding a lot of hair in the shower and in my room... anyone experienced this?

 

Posted 12/6/2010 9:05 AM (GMT 0)
It's a general problem.It's not a allergic problem and hair loss problem is common problem.Its due to our bad life style.
Posted 12/6/2010 1:12 PM (GMT 0)
I've been having that tongue reaction on and off for the past 2 or 3 years also. Frankly, I've not remembered to ask a doctor about it. Acidic foods.... salad dressings...ugh.

I find I lose more hair at the time of a flare or even a month or so after - for me it's flare-related, not med related. Right now I'm finding less hair in the "haircatcher" in my shower than I've seen in ages. So... I know some folks lose some hair with meds, but I wanted to throw out that illness can cause hair loss, too.
Posted 12/6/2010 5:35 PM (GMT 0)
Thanks for the feedback and yeah the tongue thing is getting on my nerves.

I can't eat anything without being in pain and my tongue swelling up.

Also the hair loss could be related to the flare ups I never thought of that but i have noticed my hair thinning on top.

I've always had really full and pretty hair and it's still full but I can tell the top is thinning.  It's upsetting me a bit cause I'm only 20 and losing hair in college is no fun.  I wear my hair up everyday and just pretend I don't like fixing it.. ha.

 

Posted 12/7/2010 4:14 AM (GMT 0)
I have seen posts from others who said Asacol caused them to lose hair, probably a somewhat rare side effect.

Here is an older post from 2008 on the same subject.

www.healingwell.com/community/default.aspx?f=38&m=1214469
Posted 12/7/2010 5:14 AM (GMT 0)
I was one of the people that posted a reply in that 2008 thread. Asacol most definitely made me have hair loss--noticed in the shower, just like you. When I quit taking Asacol the hair loss ended (and the hair came back!)

I also, now that you mention it, had thrush a few times during that time. a gross thing that happens to your tongue. I also have not had that problem since I went off Asacol. I think I was allergic to the drug or to a binding agent in the drug.

If you read my post from 2008....I had to leave that GI to get a GI that would listen to me about how Asacol was making me sicker.

Good luck
Posted 12/7/2010 6:15 PM (GMT 0)
Thank you guys so much! THis really helps and I'm going to talk to my doctor about this and see what he thinks. If he doesn't listen I may leave mine too!
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