HealingWell
Search Close Search
☰

Day #2 off prednisone, have a headache and feel surly

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/20/2011 7:52 PM (GMT 0)
could be PMS too, but feels a bit different this time.  I have been on varying does of pred for the past three years, I was at 10mg a day for the last year and tried to get off of it in the summer (w/out any maint med, yes I was a bad girl!).  Small flare in Oct went up to 40mg a day and tapered down to 5mg. Now I am off completely.

I am on Imuran now for maint med, wish me luck!

Just not sure what happens to others when they finally get off pred?  How do you feel?

Posted 1/20/2011 8:54 PM (GMT 0)
Wow, congratulations. That is a long stretch and you were able to break the cycle. I am so happy for you. Have you gained weight? I need to lose pred weight so badly!
Posted 1/20/2011 9:02 PM (GMT 0)
I remember feeling really blue and... weird. So - this, too, will pass!
CONgratulations for getting off it!!
How long have you been on the Imuran?
Posted 1/20/2011 9:36 PM (GMT 0)
God bless. Off pred. Whoo whoo! I had a prednisone psychosis after I stopped (a withdrawal), ton of itching, everything you can think of causing extreme anxiety. I believed it contributed to my relapse. If I were to do it over again I would make sure that when on pred and off I was on antidepressant med.
Posted 1/21/2011 12:29 AM (GMT 0)
Felt like I was about to die for awhile, lol. Been over a year now since the stuff crossed my lips. It's a hard feat to accomplish for those that become dependent.
Posted 1/21/2011 1:01 AM (GMT 0)
Wow, Beth, that's terrific news that you weaned off Pred! It may take your body a few months to readjust considering that you took it for a good while. Try to stay positive, pay lots of attention to good nutrition, rest, exercise, give yourself rewards here & there. Good luck with transitioning to Imuran and please keep us posted on your progress. You're likely busy fighting off Ol' Man Winter, too! Seems we're in for a long one this yr in the Northeast. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 1/23/2011 10:10 PM (GMT 0)
Thanks everyone for your responses I really appreciate it!

@notsosicklygirl - I put on about 20 pounds from pred, I just went to see a nutrionist and of course I already know pretty much everything ; )  I have to change my portions and my eating habits (i.e. eat at the dinner table, not the couch) and exercise.  I  have a gym at work and donate monthly to Gold's gym, so I have no excuses.

@Old Hat - Yes, too much snow, my driveway is shrinking already and we have another storm tomorrow, woo hoo!

Now I have muscle and joint soreness, I do remember that from before, when I first went down to 5mg.  Just need to push through it.

Take care everyone!

Posted 1/23/2011 10:28 PM (GMT 0)
i was on Prednisone for 8 months (feb2010 -oct 2010), took about 2 more months before feeling normal again. gained about 20 pnds too, bloating/ moon face disappeared but still have about 8pnds to go still. good luck and take each day at a time.
✚ New Topic ✚ Reply