It's miracle, but I'm in remission

Hi everyone! I just want to share with you my story!!! I posted before that I went to guy and he promised to me remission for $500 per session with sauna and shark cartilage once a week. Anyway, I never went back cos I can't afford it. However, someone told me about Chinese guy who has studied in Tibet. First time I visited him three weeks ago, and he gave me herbs which you have to drink twice a day (torture cos the taste yuck!). Ok, three weeks after, I'm off the pills for three days today, and, sorry, my stool look gorges. I haven't seen it like that since UC first started four years ago (I never had full remission and always bleeding). No blood or mucus! I'm soooo happy!!!! Hopefully it continue to work and will not take that chemical pills anymore. )))))

P.S. I was taking 9 Colazal and cortifoam everyday. My doctor was about to put me on 6MP on my next visit.

They don't give you the names of herbs, but he added and removed some during these weeks depends on my symptoms. He checks your pulse and tong, and some other tests, and gives you according to your symptoms.

what great news! kicked in so fast. 3 weeks. I've been taking herbal teas per my Chinese dr for past 6 weeks, getting better but not "cured" yet. Which Dr did you see? since you're orally ingesting the teas, I'd presume he will give you the ingredients, mine did, but held back the quantities in fear I would go somewhere else. Do you still take the tea? Curious, do you meditate?

what am I taking:
radix bupleuri
rhizoma atractylodis macrocephalae
radix paeoniae alba
poriaherba menthae
herba menthae
radix angelicae sinensis
radix saussureae
fructus crataegi
fructus aurantii
rhizoma phragmitis -> removed Feb1 -> replaced with -> Semen Plantaginis (Plantain Seed)
pericarpium citri reticulatae
Herba Patriniae Seu Thlaspi
caulis sargentodoxa???
radix glycyrrhizae
Semen Armeniacae Amarum

I'm sure there are some things that work, but everything is suspect when you look at the bases of many of the beliefs. For example, in acupuncture (at least according to Wikipedia), "location of meridians is based on the number of rivers flowing through an ancient Chinese empire". No offense intended toward anyone, but that's ridiculous and casts major doubt on the whole thing. Even if there was some coincidental relationship to geological formations, studies suggest the placebo effect. Qi/chi is another example. I do believe that many herbs have benefits, but more by chance than accuracy of traditional Chinese theories.

Side note... my Chinese wife is considering switching careers from computer science to acupuncture and other traditional Chinese medicine, so things might get unpleasant around here.

I have a friend who studies acupuncture and chinese herbs and she doesn't even know what colitis is. She doesn't know anything about any illness as a matter of fact. Somehow she is able to treat people for these illnesses. How can she properly put me on a regimen if she doesn't even know what she's treating?

I would try it but I am definitely skeptical. I would be willing to bet you could have to see quite a few acupuncturists before you found a good one. My friend is just starting to practice now, I don't think she has patients yet. Unforunately i am not close by or I could let her practice on me for free.

This Chinese dr id Pro as I said he has been studied in Tibet. I see a lot of people in his weiting room for acupancture who were saying he helps. Btw, he said that acupancture will not help me, cos hole my system is a mess, and we have to work on this first. Plus, his goul not to get money from you. You pay for first visit, and then can come to him as many times as you want with different issues and you will pay just for herbs. I have to go every week ant let him know what I feel, so he can adjust the right mix for me personally. I think this is professional.

Ive been realtivly symptom free for 12+ years and now need a partial colectomy due to severe narrowing and scarring. The doc is unable to get past with a scope and an attempt at a CT didnt work either. Im worried about the possibility of colon cancer and my colon wont let it be checked.

Im scheduled for early May, any pointers?

Great news that you're in remission - long may it continue!!

I went to a herbalist when I first had colitis because it wasn't getting better - I told them that the specialist had said I should eat lots of fibre to which the herbalist replied, that's the worst thing you can do. I cut out fibre and took the natural remedy they gave me - my colitis cleared up in 2 weeks. Even if the remedy had nothing to do with the remission, I learnt about fibre from the herbalist - not from the specialist!!

I'm always amazed by the number of sceptics that don't try things before saying they don't believe it. Just because we don't trust something or we hear/read that something didn't work, doesn't mean that it won't work for some people. If we just followed what the medical profession say, they'd be very rich and many of us would be ill or at the very least misdiagnosed.

The pattern of UC is - what works for some doesn't work for others. So having an open mind is very important.

Peace&Harmony said...
Wow! I have a Chinese friend who's going to visit a Chinese doctor in NYC next month. I may tag along. Could you let give us the contact info for this doctor?

If it's not permissible to post here, please email me at [email protected]

Thanks!

I sent you e-mail, you probably can contact him and talk to him first. They opened Wed, Thur, Fri, and Sun from 11am.

spluxa, did you start to have symptoms again.....?
You're right, 4 Colazal and herbs ain't too bad........

I hope things stay on an even and good path for you!

spluxa said...
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Update four weeks later, back on pills but half a douse. 4 pills a day + herbs. I almost gave up cos I had to start pills again, but then desided that 4 Colazal + Hebs are better then 9 Colazal + Cortifoam + 6mp.</font></font>

Completely unsurprising. Chinese "medicine" is 110% quackery. I hope you find some real treatment to achieve a solid and long-term remission. Have you not tried Remicade or Humira in four years?

beachlife said...
Gavriel, unsurprising they were able to half their medication? Sounds pretty positive to me.

Sure it's positive, but it provides no evidence of the alleged efficacy of Chinese "medicine" (I believe we should consider forbidding this "practice", by the way). Even without treatment, many UC patients (myself included) have had episodes of "remission" that can last up to six months or more. Eventually, most UC-patients learn these lessons the hard way, and stop jumping for joy as soon as they've had a few weeks or months of feeling good - while claiming that they've found their personal "cure". Unless you're feeling really good for at *least* one year, then don't come running to me while saying that some magic powder you got from some fake doctor (Chinese, homeopathic, naturopathic, or otherwise...) gave you "remission". UC is characterized by episodes of being symptomatic and asymptomatic, with or without medication. So again, feeling good for a little while without conventional treatment means absolutely nothing. I have "recovered" from VERY extreme flares in the past with one ingredient - time. Solumedrol, prednisone, and low-residue diets while being hospitalized and getting my sugar, salt, and water via IV couldn't pull me out of a flare a few years back... only waiting and suffering did. I knew the drugs had nothing to do with it because if they had worked, they would have worked much, much, much sooner. Should I go an tell everyone that room 101 in the hospital in which I was checked in has magical powers? No, because that wouldn't make any sense, right? We should apply the same standard to anecdotes that are senseless.

I don't mean to rain on anyone's parade, but I'm somewhat of a UC veteran and a science geek. I don't want anyone to be fooled by their own delusions, or worse yet, to be taken in by the delusions of others. Life with UC is hard enough without being so desperate that we chase after fool's gold. I may be abrasive, and I admit that, but I participate in this forum because I care and because I understand... and because I sympathize in ways that people who don't suffer from the disease cannot. Except for those who have had surgeries (I have not yet had to have surgery, knock on wood!), I understand the vast majority of UC-sufferers. I've been there, I get it.