Who is flaring? Who is in remission?

I am the best I've been in 10+ years but I still have to watch things to keep on track. Do I have room to improve? Well a perfect day for me would be not to think about UC at all but that may take a while to achieve.

My report card: no bleeding for a very long time, no real urgency even in the AM although I still can't wake up and run out of the house to start the day lol, gotta allow time for BM's. D is long past unless I slip up (mostly on purpose) and have some coffee or other aggravator. Haven't had to use mesalamine enemas for many months.

As I've said many times diet modification has been the reason for my improvement. And whenever I have a slight bobble I just go back to basics and remove whatever new thing (or old but desired and bad for me food) that caused the change for the worse.

My gut is a creature of habit. My brain however wants to have things that make it happy and my gut unhappy. Things like chocolate, coffee, wine.

Diet mod. is not easy but neither are stronger drugs or surgery. I know it may not work for everyone but am so glad it worked for me this last time. And what gives me peace of mind is that it is within my control.

Not quite in remission yet but headed that way.
My last scope showed inflammation mild at very end. Haven't got biopsies back.
Have to ask at appt if this means I have proctitis now or is it always pancolitis? Anyway...
Have been up and down but definitly better then I have for over a year.
Less mucous and no blood since starting rectal meds.
I still feel very tired all the time. I think I need to start pushing myself to get more exercise
to get back to normal that way. Gained a ton of weight. The only benefit to being that sick
was losing 20lbs:)

Per usual, I'm stuck in the middle- story of my life, for the last 4 years! Some good days with little to no symptoms, sopme very bad days with many bloody bathroom trips. I'm still slogging away with my meds, & taking my supplements faithfully. I do better with a pretty limited diet, but enjoy food too much to really limit what I eat. My mental hlth. is ok too- the recent problems with my bloodwork has me a little concerned, but not overtly so. A huge part of feeling well for me is sleeping thru the night- aside from a recent stomach virus, I have been able to sleep thru the night for the past 2-3 years. Not 1 nighttime BM at all, which means I'm doing ok UC wise, despite what my days look like.

I was diagnosed with colitis to 18 cm in January after about a week or two of symptoms. I think symptoms had actually had been building in mild form for much, much longer. But that's when it became unmistakable that something was wrong.

Had a colonoscopy and started daily Asacol and Canasa. No symptoms ever since, except for a small amount of blood the first couple of weeks or so post-diagnosis. No dietary modifications.

I'm going to say I'm still in remission. Not sure if the issues I'm having are fully attributed to UC yet. I've been in remission since January 2006 after 2 years of flaring. Tried every drug under the sun then did a bowel rest (unconventional) and went into remission. I still have occasional bad days but I truly don't think my colon will ever be the same as it was pre-UC. I'm much more 'sensitive' than pre-UC.

I am currently flaring.  My UC was under control most of the time - a flare maybe once every two yearsa, and the flares would be minor.  The last three years have been horrible.  Less than 6 months of remission between flares.   Currently been flaring since November.  Would love to be in better shape by June - my vacation!

I'm in remission thanks to enemas and this group. I believe the blood I've had very infrequently is aggravated internal hemmies because there is irritation in the anal canal that follows the particular bm. Increasing psyllium and water is the answer.

So happy about it. Feel it's all about managing the topicals.

I'm pretty much "normal". Past week forced to deal with a fissure that I'm neglecting and a bit of an external hemmie. I'm lazy regarding external meds and the only way I can describe the physical feelings was that my entire backside was radiating heat sensations.

I always go back to nightly enemas regardless... because I don't want a flare...did that for 4 nights then two then back to every third as of tomorrow.

I know I'll never do without meds, but I'm happy that I can still use the 5ASA oral/rectal after 22 years.

Fibre and probiotics seem to be a plus for me. REgarding food symptoms...yes pretty much standard if I have too much of something that causes me gas or loose stool, but once it's out...no symptoms.

I'm in a good place UC-wise...but for "me in general", there is room for me to improve upon regarding better food choices, exercise and sleep schedule. working on it..;-)

q

Remission: Solid stools, once daily. No blood, no urgency, no cramping. I will occasionally "feel" my colon depending upon what I eat or if my stress level rises. I think my "feeling" is more in line with a concomittant irritable bowel syndrome. My daily activity can generally be very stressful. I work as an orthopedic surgeon and deal with a lot of trauma on a day to day basis.

My Treatment: My key to maintaining remission has been VSL#3 and a modification of the specific carbohydrate diet. Basically, everything according to scd but I tolerate rice and quinoa well. My diet is very simple. I have brown rice, vegetables and farmer's cheese mixed together for breakfast. I than have yogurt with VSL 3DS late morning. Lunch is usually mostly veggies with a grain and a protein (usually chicken/fish) and dinner is the same. I eat a lot of green vegetables (spinach, kale, green beans, arugula). I go easy on nuts, they cause gas but no flare. I have yogurt and VSL3 an hour or two before bedtime.

Other contributing factors:

Besides probiotic therapy and diet, I maintain my health with Nutrient 950 Multivitamin by Pure Encapsulations, Boswellia 300 mg 2-3X daily, Meditation, Cardio/Strength training 4-5 times a week,

I have come from being dangerously close to losing my colon; have been on Remicade, Cimzia, 100 mg Prednisone, Colazal, Asacol, Lialda, Low Dose Naltrexone, suppositories, you name it. I was told I would never get of Remicade and that it would buy me a couple years to get my life in order before I would have my colon removed. I suffered horrible side effects from Remicade, but it did help bring down the inflammatory process of my colon.

 

Flare since '05, but dx with Lyme's disease as well. My hopes are high and I'm not giving up on to waking up one day and it all be gone. I'm just waiting for my turn and when GOD says it's my turn, I will know. He does everything PERFECT. I will know it is him without a shadow of a doubt. That saying...you know.. that you know, that you know... that you know...no doubt it was him and nobody else.

Flaring. 13-16x per day. Blood, mucus, D, urgency, accidents, the works. Late for 3rd loading dose of Remi which has likely made things worse.

3rd dose tomorrow. Iron infusion on Mar. 21. Hope to be feeling much better by month's end.

I'm in remission! It is always a good day if I can say that. :)
For me remission means my BMs usually look great (with an occasional soft serve icky one), no blood, no pain. I will go 1-5 times in the morning and have no BMs the rest of the day. I can hold it long enough to get to a toilet (even when in the car and I have to wait a while).

I maintain the diet that works for me: no eggs, soy, fried foods, ground beef, caffeine, milk. The only thing I eat out of a can/jar is tomato paste and tomato sauce (to make other things with) and natural peanut butter. I can eat good quality beef occasionally, chicken, rice, veggies, salad, bread, beans occasionally... and plenty of other unprocessed foods.
I also do fine with beer and chocolate every once in a while as long as I don't consume too much.

I modified my diet by using a food journal and that was by far the best thing I have done for myself and my UC.

I'm on asacol (6 a day) and I also take psyllium husk powder twice a day plus 2 capsules of slippery elm.

I've tried several other things with varying degrees of success or failure.

I got out of my most recent flare (which started right before christmas) by starting nicotine with an e-cigarette. Currently tapering off the nicotine and so far so good. I want to go off of it so I'll have something in my bag of tricks for my next flare. :) This was the first flare I've gotten out of without pred, woohoo!