Holistic 12 years-First severe flair 4-10-11 Big wake up call!!!

I had the first severe flair in my life last 2 months. Up til that point I only had mild to moderate. I went from 165 to 128 in 8 weeks, became severely malnourishes and had to be hospitalized for 5 days.

They put me on 60 mgs of Prednizone and asocol which saved my life... 20 days later Im up from 128 to 150, and pooping normal for the first time in 30 years. But this morning I saw some streaks of blood appear again on the surface of my movement. Not alot but it did get my attention. I down to 40 mgs of Prednizone from 60. The last 4 days I haven't seen any blood at all, but this morning I did. So Im a bit on guard.

They have me eating a lot of food, and I did start eating 2 large avocados a day and sunflower seeds for fiber and fat. Maybe my system isn't ready for the fat and fiber yet. I was incapacitated for a month lying on my back passing blood 20 to 25 times a day until I was admitted, so Im walking every day 20 minutes to get reconditioned.

Just wondering if the reappearance of some blood is a warning of any sort...

Post Edited (Godslyric) : 5/20/2011 5:43:31 PM (GMT-6)

When you say you were holistic for 12 years, what exactly were you eating or what meds/supplements were you taking?

I myself was very healthy and a vegetarian when I got UC. I don't blame the vegetarian part for getting UC but what I was eating was contributory IMO along with several other factors including antibiotic overuse, Diet Coke with artificial sweeteners and too many carbohydrates in my diet.

Be cautious with too much fiber right now, that can come later. Well cooked veggies like carrots and green beans, eggs, fish, chicken, chicken broth were all good when my colon was worst. Cook with olive oil or coconut oil. Drink veggie juice in small amounts. Drink lots of water, very helpful. L-glutamine is also helpful to healing, dissolve in water.

Mesalamine enemas (brand name Rowasa) help bleeding a lot, highly recommended, start ASAP.

Is there an established link between UC and aspartame/artificial sweeteners? Seems like a lot of people here refer to it but I haven't seen any evidence..

Thanks for al the info, In reply to "Iamagarderner"...

I was on a anti inflammatory diet, supplements, and a few amino acids, Primal Defense. I never had anything worse then a mild to moderate flair up, but, they would last for a few months, then go into remission, then six months down the road, I start loosing weight again, getting constipated, and the cycle would go on once again. I tried to keep it under control, but for some reason this flair came on and nearly killed me. I did do some things wrong and should have been smarter then I was. The price for being my own doctor was very high. When I was admitted I was 127 lbs, Im a 170 lb man that keeps in good shape. This was real ugly to say the very least.

That's horrible- I'd be concerned the pred taper is too fast, if you're seeing blood. Avocados are ok, but definitely stop with the sunflower seeds! Yes, the enemas- they're such a drag to use, but they can be helpful. The timing of your post is interesting- there's been a big debate on another thread about how diet & supplements have "cured" a member- your post verry succintly points out the flaws in that argument! I'm sorry you've been going thru this, but it's good that you did go to the hospital, & are now willing to be pro-active in terms of meds, etc.

Yes, a 12 year remission is long and should be celebrated but the guy that Eva Lou is referring to is the one who said he was cured with diet.  I think she is merely pointing out what we all know, UC is a chronic disease with periods of flares and remissions.  Our other poster does not believe this. 

Sue

If that's the case, imagardener, I hope you're stocking up on enemas & balsalazide for your inevitable horrible flare! I don't think "taking sides" is what anyone is after- suebear is right, you are right too, imagardener. It's wonderful that someone can have a 12 year remission, by any means. Coincidence, that diet & supplements coincided with remission? Maybe so. The point I was making is that one can be in remission for years, then flare up out of the blue. Was the OP "cured" for 12 years, then suddenly got a disease all over again? I think not. Anyway, I do hope your bleeding stops, Godslyric- if you are willing to go the med route, there are a whole host of meds currently available to you, much bigger guns than pred & Asacol. If you want to go the au naturel route, I hope it works ASAP & gets you back to where you were. I assume you're seeing a GI fairly regularly at this point? Have they mentioned any other med options to you, or any supplements, etc?