HealingWell
Search Close Search
☰

They can't figure us out....

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/4/2011 4:29 AM (GMT 0)
So, for the scientists studying UC, they can't figure out the commonaltity that explains why people get UC.  Let's see if we can find something we all have in common.  Please post and answer each question.

1.  Age: 33

2.  Age Diagnosed with UC:  19

3.  Hair color:  Red

4.  Eye color: Blue

5.  Do/did either of your parents suffer from UC or another IBD?: No

6.  Do/did any of your siblings suffer from UC or another IBD?: No

7.  Do you have any other auto-immune diseases:  Yes

8. What are they:  Arthritis and psoriasis

9. If you have another auto-immune disease, which of them came first?:  Psoriasis

10.  Which auto-immune disease is the most severe:  UC

If you can think of any other questions, please post them.

Posted 5/4/2011 5:13 AM (GMT 0)
1. Age: 47
2. Age Diagnosed with UC: 47
3. Hair color: Blonde
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: no
8. What are they:
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe: UC

I can't be sure about my osteoarthitis, family has it, but mine disappeared a few years ago. Family are also all obese, except for my 2 siblings that have had gastric bypass surgery. I've always wondered why I was always skinny in an obese family and I'm the only one who always had tummy troubles.

I'm 0- blood type and a carrier to hemophelia.
Posted 5/4/2011 5:19 AM (GMT 0)
1. Age: 49
2. Age Diagnosed with UC: 45 (an uncommon age to get UC)
3. Hair color: Black
4. Eye color: Green
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a
10. Which auto-immune disease is the most severe: IBD

I would like to add the following question:

11. What do you think caused your disease?: antibiotics
Posted 5/4/2011 6:22 AM (GMT 0)
I am blood type A+. Still in the dark as to why I have UC.
Posted 5/4/2011 10:50 AM (GMT 0)
1. Age: 41
2. Age Diagnosed with UC: 41

3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a
10. Which auto-immune disease is the most severe:

1. What do you think caused your disease?: Accutane

Posted 5/4/2011 11:22 AM (GMT 0)
1. Age: 25
2. Age Diagnosed with UC: 24
3. Hair color: Black
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: Asthma and Eczema
9. If you have another auto-immune disease, which of them came first?: Asthma
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease?: Antibiotics (Bactrim DS)
Posted 5/4/2011 11:42 AM (GMT 0)
1. Age: 41
2. Age Diagnosed with UC: 22
3. Hair color: Red but naturally a dark brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: my mother had CD
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: Psoriasis
9. If you have another auto-immune disease, which of them came first?: Psoriasis
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease? I believe I was predisposed to getting an AI condition due to my mother having Crohn's, however I believe that antibiotics and food poisoning activated it.
Posted 5/4/2011 12:49 PM (GMT 0)
1. Age: 55
2. Age Diagnosed with UC: 29
3. Hair color: brown (well, naturally gray...)
4. Eye color: Hazel
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they:
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe:

Other relatives with IBD: Aunt (mother's sister)
several children of the daughter of my mother's cousin
Posted 5/4/2011 12:54 PM (GMT 0)
1. Age: 56.5
2. Age Diagnosed with UC: 46
3. Hair color: dirty blonde
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a
10. Which auto-immune disease is the most severe: n/a
11. What do you think caused your disease? multiple possibilities: antibiotic overuse (MVP diagnosis required antibiotic pre-treatment for extensive dental work, protocol is now different), diet too heavy in carbohydrates although healthy vegetarian overall, very high stress level before developing UP, drank Diet Coke like water (bad combo-artificial sweetener with high carb diet), genetic pre-disposition
12. Predominant genetic BG/skin type: Northern European /light skin with freckles
Posted 5/4/2011 12:54 PM (GMT 0)
1. Age: 30
2. Age Diagnosed with UC: 29
3. Hair color: Brown
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: None
9. If you have another auto-immune disease, which of them came first?: None
10. Which auto-immune disease is the most severe: UC

No history of any IBD IBS IB-whatever in family. Since 18 I have been a bodybuilder (hobby not pro). I eat properly for the most part and workout at least 4 times a week.

11.What do you think caused your disease? I think some people are just unlucky and get just the right combination of something in their system that causes UC/UP.
Posted 5/4/2011 1:08 PM (GMT 0)
1. Age: 35
2. Age Diagnosed with UC: 33
3. Hair color: Brown
4. Eye color: Hazel
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No..sister has IBS symptoms
7. Do you have any other auto-immune diseases: No
8. What are they: None
9. If you have another auto-immune disease, which of them came first?: None
10. Which auto-immune disease is the most severe: UC
11.What do you think caused your disease? Unhealthy, processed foods...typical American diet.  I had my galbladder removed when I was 32 and I think this may have triggered the IBD to get worse.  Then when I had my baby when I was 33 I think the crazy hormones and shock to the body of giving birth put me into my first full blown flare.
Posted 5/4/2011 1:56 PM (GMT 0)
1. Age: 55
2. Age Diagnosed with UC: 48
3. Hair color: Blonde
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: Yes, sister with CD
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a
10. Which auto-immune disease is the most severe: n/a
11. What do you think caused your disease?: Genetics
Posted 5/4/2011 2:51 PM (GMT 0)
1. Age: 36
2. Age Diagnosed with UC: 31
3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No but my grandmother did and SEVERAL other family members have other auto-immue related issues
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: uveitis (probably related directly to UC)
9. If you have another auto-immune disease, which of them came first?: uveitis
10. Which auto-immune disease is the most severe: UC
11. I think this is a genetic auto-immune system disorder for me which is why Imuram works for me.
Posted 5/4/2011 2:54 PM (GMT 0)
1. Age: 44
2. Age Diagnosed with UC: 42
3. Hair color: Light brown/dark blond
4. Eye color: Greenish hazel
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they:
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe:
11. What do you think caused your disease?: Stress, over-work, sleep deprivation, too much alcohol
Posted 5/4/2011 3:10 PM (GMT 0)
1. Age: 56
2. Age Diagnosed with UC: 55
3. Hair color:Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: Psoriasis
9. If you have another auto-immune disease, which of them came first?: Psoriasis
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease?: Either Lyme Disease or the Doxycycline I took for it.
Posted 5/4/2011 4:01 PM (GMT 0)
1. Age: 42
2. Age Diagnosed with UC: 40
3. Hair color: Brown-dark blond
4. Eye color: Hazel
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: In order - endometriosis (is this AI?), Graves disease
9. If you have another auto-immune disease, which of them came first?: Endometriosis
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease? Don't know. I have always been a high-stress anxious person. Could that be it?
Posted 5/4/2011 4:08 PM (GMT 0)
1. Age: 25
2. Age Diagnosed with UC: 18
3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe:
11. What do you think caused your disease? Working at a greasy workplace during college (KFC)
Posted 5/4/2011 4:32 PM (GMT 0)
1. Age: 46
2. Age Diagnosed with UC: 23
3. Hair color: Blond
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe:
11. What do you think caused your disease? No clue.
Posted 5/4/2011 5:56 PM (GMT 0)
1. Age: 21
2. Age Diagnosed with UC: 19
3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a
10. Which auto-immune disease is the most severe: n/a
11. I'm not sure. When I first started getting symptoms I was diagnosed with a parasite and I took a lot of antibiotics. If I didn't already have the UC then, maybe that played a part in it. Other than that I'm not sure. I just started college and moved to NY for school when my symptoms started up. Stress?

Post Edited (nettiemoore) : 5/4/2011 12:01:09 PM (GMT-6)

Posted 5/4/2011 7:03 PM (GMT 0)
1. Age: 21
2. Age Diagnosed with UC: 20
3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: Asthma
9. If you have another auto-immune disease, which of them came first?: Asthma, baby. Mother smoked while carrying me (couldn't stop because it'd put me in shock), and smoked in the house while I was a child but stopped when i got sick.
10. Which auto-immune disease is the most severe: UC. I rarely get an attack.
11. What do you think caused your disease?: My first year of college I was travelling on two buses to get there. Symptoms first started showing in February after months of getting sick. For two years prior to going to college, I never got sick. I was put on a strong antibiotic to fight off a nasty sinus infection. I've been on several antibiotics throughout my life. Possible cause, I truly believe it.


Gotta tell you guys that I love you for asking what the doctors won't. Made my day. :-)
Posted 5/4/2011 7:10 PM (GMT 0)

1. Age: 52
2. Age Diagnosed with UC: 45
3. Hair color: Brown
4. Eye color: Brown
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?:
10. Which auto-immune disease is the most severe:
11. What do you think caused your disease? Not sure.

Late husband was dx'd with UC a year before me....

Posted 5/4/2011 7:26 PM (GMT 0)
1. Age: 64
2. Age Diagnosed with UC: 54, but had symptoms since about 45.
3. Hair color: Dark blond
4. Eye color: Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Yes
8. What are they: Grave's disease, eczema, arthritis, asthma
9. If you have another auto-immune disease, which of them came first?: Grave's disease
10. Which auto-immune disease is the most severe: Currently, the arthritis
11. What do you think caused your disease? A bad combination of genes combined with less than great karma.
Posted 5/4/2011 7:31 PM (GMT 0)
1. Age: 42
2. Age Diagnosed with UC: 30, but had symptoms since about 22.
3. Hair color: Dark blond
4. Eye color: Grey/Blue
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: NA
9. If you have another auto-immune disease, which of them came first?: NA
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease? Living with a Smoker for the summer while in University (also when my seasonal allergies started...)
Posted 5/4/2011 7:34 PM (GMT 0)
1. Age: 32
2. Age Diagnosed with UC: 27
3. Hair color: Brown
4. Eye color: Hazel
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: Not Sure.
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: Whatever Causes the Fatigue
10. Which auto-immune disease is the most severe: UC
11. What do you think caused your disease? Not sure. Maybe a bactiera. I got UC after a bought of BV
Posted 5/4/2011 8:53 PM (GMT 0)
1. Age: 37
2. Age Diagnosed with UC: 35

3. Hair color: Brown(now added blonde highlights lol)
4. Eye color: Green
5. Do/did either of your parents suffer from UC or another IBD?: No
6. Do/did any of your siblings suffer from UC or another IBD?: No
7. Do you have any other auto-immune diseases: No
8. What are they: n/a
9. If you have another auto-immune disease, which of them came first?: n/a

10. Which auto-immune disease is the most severe: n/a
11. What do you think caused your disease? Came 2 years after having first baby.  I don't think it was from hormones (since 2 years later) but the stress of a new baby and taking alot of advils for headaches.  Also sucky luck.

Thanks,

B

✚ New Topic ✚ Reply
12