Transdermal LDN put me in remission!! PART II

Hey first poster on part II! Woohoo! haha.

Anyway, I wanted to post how I'm doing today, even though I said I would wait a few days to really give the LDN time to kick in.

I have had much more energy today than usual, and about half of the BMs I've had during the day have shown significantly more form than others recently. They're not beautiful by any means, but they are better than they have been in weeks. The number of BMs per day has been under 10 in the past few days, which is nice. It's still a lot, but relative to 15-20 a day, that's reason for celebration!

Now I'm not waving the victory flag yet, but it already looks like I'm on my way. I stopped taking all the other supplements I was before the LDN just to test out the LDN itself (in case all that fish oil and boswellia finally started working), and I am still seeing improvement. I've eaten some bad stuff recently (i.e. loads of potato chips), and yet I feel better today than I have in the last month and a half before I stopped my last round of prednisone.

In short, it's working. And fast.

And MAN did I have some vivid dreams last night! Frankly, it's a side effect I rather enjoy. The sleep disturbance is decreasing, as it seems I get used to the chemical rush from the endorphin release.

I expect myself to be near remission within a week. Ain't that somethin...

Boxermom, I can't express how much I know the feeling. The frequency and urgency is easily the hardest part about this disease.

I should clarify that I'm no means close to remission, but it is only day 4 and I am seeing and feeling noticeable improvements. That says something.

I have a feeling both of us will be in good remission, Box, within a few weeks. Imagine how sweet it will be!

badslinke,

Glad you are seeing improvement. I'm sure you will continue to see more.

The interesting thing about LDN, is somehow as it boosts your immune system, it also enables you to tolerate foods that under normal circumstances you would not be able to.

Let us know how your progress please.

 

badslinke,

Since being diagnosed with UC, I have made major changes to my diet because I had to. I went from someone who loved food, to someone who hated food because everything made me sick. I did some research and found info on food combining - are you familiar with it? It makes alot of sense - add the wrong foods and the resultant product is: acid, gas, GERD, bloating, diarrhea, etc....

So until I got on the Transdermal LDN, I was basically on a protein diet - whey protein shakes made with almond milk, a portion of fish, chicken for lunch and dinner. No carbs, no fruit, no veggies ( I found that if I ate anything else, it would aggravate and make me bleed more).

But after my 2nd week on Transdermal LDN, I became more bold because I was feeling great - so I started to cheat. I had pizza one day, without any repurcussions. Had fruit and veggies, no problems. But other than pizza, I always  kept in mind the true food combining rules, i.e. never mixed carbs with proteins, fruits with carbs or proteins, etc...

I still cheat without any consequences, as long as I keep to the food combining rules.  Whereas before Transdermal LDN, if I had any ice cream = terrible consequences.

Now, I can actually enjoy ice cream without suffering.

Last week I did have a delicious burger (not from famous places, but rather homemade joint), and no problems - and that was classically poor food combining: bread as a carb + meat as protein.

Skip had told me that he knew of many who after months of LDN, had been able to eradicate their food intolerances, and get a more varied diet without suffering the consequences.

Anyway, you may want to give food combining a try... and see how it works for you. Or, just wait until the LDN does its thing and will enable you to eat more foods?

Thanks for asking - and please keep me in the loop as to your progress :)

 

I just wanted to say that for the past few days I have been terrible. Things were going good now it's not.

I'm not really sure. Seeing some mucus, a little blood, no form. I had a slice of pizza but doubt that did it. I occasionally have a piece here or there. Things were totally formed and now not so much. I jumped back on the Proctofoam today. Thinking I should just go ahead and try the Cimzia sooner rather than later.

I just wanted to say - I am reading all you entries on this topic, and I am rooting for all of you, for all of us, in trying to find that special something that will help us and other UC sufferers.

Go, team! I am proud to know you all.

Thanks for the support Songlady!

I was really lucky. I asked my doctor and he wrote it for me. He looked it up while I was there. He probably thinks I am crazy. I made him change my Asacol to Apriso also after reading that article on here. Any idea how long I should give the Apriso? It is not working either so I may just finish off my Asacol.

Much love Songlady Every time I read the stories from someone who suffers from UC, I get overwhelmed with compassion. More so than stories from others with other diseases, perhaps because I know so well what it is like to deal with this beast. I remember reading a story about an Hindi girl who lives in the States that's gone through a double digit number of surgeries, and she's worse than ever before. I nearly wanted to cry. No matter how bad you have it, it always seems like someone else out there has it worse than you, one way or another.

Notsosicklygirl, try contacting Dr. John Sullivan in PA about getting a LDN Rx. He's known to be open to phone consultations and LDN prescriptions. He's mentioned several times in the forums here about LDN. He was going to be my backup if my local doc didn't prescribe it. There's also a list available through private email of doc's around the country that support LDN. Email Crystal at [email protected] She runs a website dedicated to spreading the LDN story and will send you the list of docs if you ask her. She did so for me and that's how I found my local doc. She was an MS sufferer and LDN pulled her right out of it.

Box, I've been thinking about how I'm going to execute my diet for the next week. It'll have to be boiled eggs and fruits in the morning (I really don't have time to sit down and eat breakfast before work, so I have to make things that I can take with me), chicken, steak, rice and veggies for lunch and dinner. I'll do some good, organic corn chips with guacamole and salsa as a snack, and nuts and things as well. It's nearly an SCD diet, minus the rice and corn chips. It's easily pulled off for a week. I did the SCD (as best I could) for a year, so doing a week's worth of a watered down version that just avoids wheat and dairy should be easy.

I gotta be honest; a diet relying heavily on grilled cheese can't be helping you. Even if you didn't have a compromised digestive system, I can't imagine having grilled cheese as a staple of your diet would be a good choice. Food for thought Pun fully intended.

Go team!

I love salsa and guacamole. Salsa kills me though. I thought cheeses were on the SCD diet? I know the bread is not. Lettuce is on the legal list too. Funny thing is I could eat a banana and have to run just as fast as a loaded slice of pizza. Maybe today will be a better day. I actually have to work all day so I won't eat. Nothing goes in not much comes out.

cupcakespinkgal,

 I'm so glad you like the Vanilla shakes, and find it soothing, I personally think that's because it actually is soothing (as you found out from the IBD article you noted).

Soothing is a good way to describe it, that's exactly how I feel when I have my protein shakes in the morning, like they are soothing :)

BTW, what do  you add to your shakes? And do you mix them with regular milk, almond milk, water, or juice?

I use almond milk, and add to them: liquid minerals and vitamins, maca powder, L-Glutamine powder 15 grams (very important for colonic repair), and chia seeds (for the omega 3's).